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symptoms with coffee

chrisgf

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chrisgf Apprentice
chrisgf
Posted

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

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kareng Grand Master
kareng
Posted
18 minutes ago, chrisgf said:

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Coffee has a lot of acid in it.  Could you be are having stomach issues with that?  

Coffee does not cause you to make Celiac antibodies that attack the intestines.  

chrisgf Apprentice
chrisgf
Posted
  • Author

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

kareng Grand Master
kareng
Posted
15 minutes ago, chrisgf said:

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

For me, I found that the effect of the coffee acid on my stomach kind of comes and goes.  I might have a few days it just hurts!  I use come creamer in it and that helps.  I can do dairy, but I really like the So Delicious vanilla creamer.  Maybe go a week or two and then try with creamer?  Or mix it with chocolate almond milk?

chrisgf Apprentice
chrisgf
Posted
  • Author

my hubby said that the acid is probably the culprit.  I like the the silk dairy free creamer,,,but i am going to stay away from coffee and see what happens.  i don't like being in these DF and gluten-free diets...but i have no choice. 

 

Ennis-TX Grand Master
Ennis-TX
Posted

Yeah we had a huge debate while back about the safety of coffee, most are safe, only exception is coffee from bulk bins in stores like whole foods or flavored artisan blends sometimes come into contact with contaminated scoops, ingredients, or in the VERY rare case they might use barley malt or roasted barley in a few flavor options. Name brands are normally safe, I contact a whole list of companies and did find that many companies that do "Specialty" flavored coffee do have gluten contamination issues NOTE these are smaller special order ones.  I also found one that is gluten free and the main rep has gluten issues and celiac in her family. If you want to try again Christopher Bean Coffee has some wonderful dessert flavored coffee that I get often.

Then again it could be as kareng says and just a acid issue and it irritating your damaged gut and intestine. But do not fret you should be able to have some once it heals. Decaffinated for now might be easier on your stomach and there is the brewed cocoa alternative from Crio Bru.

cyclinglady Grand Master
cyclinglady
Posted

My grandmother always told me never to have tea or coffee on an empty stomach.  She said a few crackers, toast or cookies served with tea helped to avoid an “bilious” stomach.  She was a nurse.  Sometimes old advice still holds true.  ?

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chrisgf Apprentice
chrisgf
Posted
  • Author

thank you guys for the information.  i have heard that coffee can never be 100% gluten-free...but i think more and more that it may be acid.  

thanks for all your help

Celiac comments Rookie
Celiac comments
Posted

A lot of celiac sufferers have restless legs. Coffee and especially diet soda greatly worsen my RLS. 

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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