Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No gluten but still diahorrea


Donna1970

Recommended Posts

Donna1970 Rookie

Sorry about the title, I never have a clue what to put.

ive not been diagnosed officially just tentatively by my GP so this may be irrelevant. I have not had any gluten for over a week now, that I'm aware of. in fact other than a cheese sandwich (I think it was Friday) with gluten free bread which affected me badly , I ate out Sunday and had a roast dinner totally gluten free -the staff double checked the list for me and promised no cross contamination they are  nationwide company so I trust them. I had a few pink gins and lemonade :) I was a bit bloated and uncomfortable but other than that fine. I havnt eaten anything since only drank coffee and until this morning havnt taken any Imodium since Saturday which usually helps a bit with the diahorrea,but the early hours of this morning (Wednesday in the uk) I've started with cramps , bloating,a little nausea and really bad diahorrea again. Assuming it is celiac disease or some sort of allergy would this be normal?

not sure if it's relevant but I don't usually eat daily so I don't think that would make a difference.

sorry if it's a stupid question,everything's up in the air atm and I'm totally clueless about it all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hi Donna,

Just on this point:

1 hour ago, Donna1970 said:

ive not been diagnosed officially just tentatively by my GP so this may be irrelevant. I have not had any gluten for over a week now, that I'm aware of. 

The same advice from your other thread still holds: 

 You are going gluten free before you have testing, this isn't correct and it's going to make it much more difficult and potentially painful for you should you pursue a diagnosis later down the road. Consider an appt at your local surgery with another doctor to clarify just how coeliac diagnosis actually works :)

Ok back to your post! You mention a couple of things which suggest that coeliac/gluten isn't neccesarily to blame for your current discomfort:

1 hour ago, Donna1970 said:

I don't usually eat daily

Lot's of people do some fasting during the week but generally keeping to regular eating times can help you resolve some stomach issues.

1 hour ago, Donna1970 said:

I havnt eaten anything since only drank coffee

If your stomach is irritated coffee isn't the best thing you can give it!

Finally if gluten is a problem for you and you've just gone gluten free that can sometimes be a rough ride in itself. Your body may be geared up for a response to gluten then you remove it and it's still in fighting mode. That's all supposition however and I suggest that a visit to another doctor is the best advice I can give you.

Best of luck and I hope you feel better soon! 
Matt 

 

Ennis-TX Grand Master

First off you need to get tested for this disease and you have to be eating gluten daily to get tested. Simple blood test first followed by a endoscope which would catch many "Other" issues that might be causing this.
Open Original Shared Link
Now many of us with this disease can not handle dairy for awhile....lactose intolerance is common as the villi in our intestines that help with the enzymes to break it down are damaged. Second many of us develop other food intolerance issues and processed foods are best removed and gone to a whole foods only diet and keeping a food diary to keep track of what causes symptoms.
Eating out is russian roulette, major chain or not does not matter when residue or crumbs can set it off...oh the forgot to change gloves, they used the same knife, they used the same cutting board, they used the same serving utensils....all result in use with cealic being sick....
Alcohol should be be removed if you have intestinal issues....bit obvious sorry and you mixed it with a acidic food, a duratic sorta off sets it but still a bad idea with gut issues.
Coffee can be a bit harsh sometimes and will have a laxative effects....I love my joe but I have to go easy on it with flare ups.....
Oh and my last exposure left me with over 3 weeks of on and off D.....I was reglutening myself with a toothbrush for part of it lol.

  • 1 month later...
Chelsey Newbie

I agree with everyone above! But to just throw it out there, take a daily probiotic supplement to help with diarrhea. it restores good bacteria in the gut. Make sure its in pearl form bc that is the only kind that survives stomach acid. 

moleface Explorer

I actually have this same symptom, but I haven't been able  to find any definitive answers. I suspect multiple food sensitivity is a possibility, though I can't imagine what I could be reacting to. Either that or my gastro system has been so destroyed by a lifetime of heavy gluten exposure that I'm left with permanent symptoms even though I eat the same exact thing every day without much variation. A gastro doctor found ulcers and inflamed tissue in my duodenum and small intestine, even though I'd been gluten free for several years at that point, so I'm assuming that could cause these issues.

My telltale symptom of a glutening is constipation. I wake up to 4-6 hours of diarrhea every morning regardless of diet. I take 50 billion probiotics, experimented with high and low fiber diets, tried going off vitamin supplements (which can easily cause diarrhea, especially vitamin c and other antioxidants), etc. and nothing helps.

My original issue while eating gluten was hard incomplete stools. Ever since I went gluten free 7 years ago, my new symptom has been daily explosive diarrhea. Not to be graphic, but I literally have to shower after going because I spray it all over myself.

The only time it abates is if I accidentally eat gluten-containing food, in which case I'm stopped up for 2-3 days before the diarrhea resumes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.