Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tabbmarie

Recommended Posts

Tabbmarie Newbie

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
5 hours ago, Tabbmarie said:

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
Open Original Shared Link

It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

Tabbmarie Newbie
3 hours ago, Ennis_TX said:

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
Open Original Shared Link

It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

Ennis-TX Grand Master
35 minutes ago, Tabbmarie said:

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

This is your choice, though you do not need to eat much just a half slice of bread, a few crackers, or a tsp of wheat germ a day, eating at night before bed let some people sleep it off for the worst of it.

If you decided to go gluten free chocking it up to celiac or non celiac gluten sensitivity that is your choice, we have a few member who have had the same issues with the challenge. They are saying they are working on new testing methods that will forgo the poison ritual to prove it damages our intestines and is causing a immune reaction....about time right?

Anyway welcome to the forum, I am sort of the Sheldon cooper of the lot lol. I do baking and chef work for my income, but I have many other food issues as my disease was not addressed early enough and I developed complications with other disease and multiple food intolerance and allergies. So most my stuff is Keto/Paleo base and many vegetarian options. I do have recipes for grain free baked goods etc. But best you be off breads til you forget what gluten taste like before trying them or any gluten-free bread for that matter.
Here is the newbie 101 thread to review if your going to be assuming you have celiac.
https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

mom2boyz Apprentice

I'm a new to gluten free also, it helps that my husband was already grain free, so we didn't have much of an adjustment other than no cookies or dining out for me anymore.  You're going to have to change the way you eat.  Look up the no sugar no grains diet, or the paleo diet, start trying new recipes, eating new foods, and stay away from processed food substitutes, it's really tough the first couple of weeks, but you'll find that after a few months you'll like veggies a lot more, and foods that weren't sweet before will be much sweeter later. 

It's probably going to sound gross, but my favorite easy to make, feel good comfort food is sardines mashed with avacado on rice cakes.  Roasts in the slow cooker are really good and easy to make too.

I suspect I have had celiac (not confirmed, and until there is a gluten free test it will stay that way) since I was in my mid teens, and I had 2 kids in my 20s but was infertile when trying for #3 at about 30, but that was about the time my digestive system refused to digest anything at all and I was also super skinny size 0, which can't be good for a baby anyway.  So, hopefully, if you keep up with the diet, you'll have more time to have kids than I did.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    2. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

    3. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

    4. - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748

    AnnmarieR
    Newest Member
    AnnmarieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...