Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac disease diagnosis thru CT enterography!!!


Jimc13

Recommended Posts

Jimc13 Newbie

I was diagnosed with celiac disease in 1993.  With the onset of celiac disease type symptoms I recently underwent an endoscopy and CT enterography.  Here are the confusing results...

Endoscopy - macroscopic few folds. Pathology shows intact villous 

 

CT radiologist impression. Grades 2, 3 and 4 villous atrophy seen on slides of areas in small intestine.

How can a CT scan show condition of villous?  Is this radiologist a quack?  

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
16 minutes ago, Jimc13 said:

I was diagnosed with celiac disease in 1993.  With the onset of celiac disease type symptoms I recently underwent an endoscopy and CT enterography.  Here are the confusing results...

Endoscopy - macroscopic few folds. Pathology shows intact villous 

 

CT radiologist impression. Grades 2, 3 and 4 villous atrophy seen on slides of areas in small intestine.

How can a CT scan show condition of villous?  Is this radiologist a quack?  

 

 

 

 

It looks like the villous atrophy is seen on slides,,, meaning the biopsied samples under a microscope?  Obviously, I don't know exactly what written, so I don't know.

I am curious, have you been gluten-free for 25 years ?

Jimc13 Newbie

Yes I have been gluten-free for 25 years.  The slides I refer to were from the CT scan. I should have called them images.  The radiologist only saw the CT images.

Thank you for the quick response.

kareng Grand Master
19 minutes ago, Jimc13 said:

Yes I have been gluten-free for 25 years.  The slides I refer to were from the CT scan. I should have called them images.  The radiologist only saw the CT images.

Thank you for the quick response.

So, I think the resolution of these things has gotten better and better.  It is quite possible that the GI doctor missed the damaged areas when he biopsied.  I am assuming the 2 procedures were not done together?  Or did they use the Ct to guide the biopsies?  And how are your blood antibodies? 

this is definitely a discussion to have with the GI doc.  write down all your questions and ask until you understand.

Jimc13 Newbie

The procedures were done separately.  Yesterday I met with a GI Dr who specializes in celiac disease.

I am currently arranging to have the CT images and pathology reports from the previous MD's sent to this well respected celiac disease doctor.  The blood antibodies were not performed yet!!!

 

Thanks again for your guidance.

  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,868
    • Most Online (within 30 mins)
      7,748

    Tess24
    Newest Member
    Tess24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.