Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa

Moggy

By Moggy
in Food Intolerance & Leaky Gut

 Share

Recommended Posts

Moggy Apprentice
Moggy
Posted

I ate some gluten free quinoa, and boy am I sick! No dh reaction, but my stomach is acting like ive had a bad glutening, and totally knocked me out. The brand is certified gluten free, but is it possible quinoa is a no go? I cant eat gluten free oats either. 

Im scared of my small amount of safe foods being reduced further! Ive never eaten quinoa before. 

My sensitivity is very high to gluten, I simply cannot handle the 20ppm supposedly gluten free foods. 

Im hoping its cross contamination, not another thing off the list. 

Im reduced to eating only soft boiled veg, no onions, no tomato. 

 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
4 minutes ago, Moggy said:

I ate some gluten free quinoa, and boy am I sick! No dh reaction, but my stomach is acting like ive had a bad glutening, and totally knocked me out. The brand is certified gluten free, but is it possible quinoa is a no go? I cant eat gluten free oats either. 

Im scared of my small amount of safe foods being reduced further! Ive never eaten quinoa before. 

My sensitivity is very high to gluten, I simply cannot handle the 20ppm supposedly gluten free foods. 

Im hoping its cross contamination, not another thing off the list. 

Im reduced to eating only soft boiled veg, no onions, no tomato. 

 

 

 

 

I find that I can eat a little bit of quinoa but a large amount seems to make my stomach hurt.  I think it may be the fiber.  Just my unscientific theory.

Moggy Apprentice
Moggy
Posted
  • Author

Thank you for the reply!

Ive classic glutening symptoms (for me) of diarrhea, vomiting, stomach pain, and extreme fatigue. It was the only new thing I ate.

But no new dh lesions. So thats good!

 

 

Ennis-TX Grand Master
Ennis-TX
Posted

What brand, there have been issues with some finding gluten grains in edisons grainery gluten free grains and lentils. If you buy dry food like those you should dump out on some butcher paper etc, sort the grains looking for anything not what it should be, wash in a grain colander well, then cook.

>.< I have Ulcerative Colitis and for the longest time had gut issues (Pain, bloating, distention, bloody stools) without the other gluten symptoms when I ate fruits or grains. Learned it was flaring to sugars and carbs. I had assumed it was bad gut bacteria for years.

Moggy Apprentice
Moggy
Posted
  • Author

It was pereg brand, with mushrooms.

I dont think I'll be trying quinoa again. Ive gone grain free for now, in an attempt to feel a bit better.

You poor thing! No sugar or carbs must be miserable.

 

Ennis-TX Grand Master
Ennis-TX
Posted
1 hour ago, Moggy said:

It was pereg brand, with mushrooms.

I dont think I'll be trying quinoa again. Ive gone grain free for now, in an attempt to feel a bit better.

You poor thing! No sugar or carbs must be miserable.

 

At first yes, then I discovered grain free nut based breads and desserts, then as a bakery owner started making my own of many. Nut butters, seed butters, and baked goods made with nut and seeds are stables along with egg dishes and leafy green veggies. Found Miracle Noodle rice and noodles that are carb free. Sweeteners like Swerve, Pyure, stevia, Lakanto etc do not bother it, and I found extracts for all my desserts and fruits I can not eat so I can taste them in other dishes......And if I somehow get my pancreas to start working right (chiropractor suspects it can be improved with adjustments and some kind of therapy as he found my t7 nerve that effects not signally right) I can start eating on a meat based paleo/keto diet.  Maybe I have just fooled myself but I am quite happy with it....and it works wonders for lean muscular body build, and I no longer have bloat and energy galore (body burns fat/protein for energy not carbs).

Moggy Apprentice
Moggy
Posted
  • Author

Im so glad you are on the mend, and happy with your diet as you can be! 

Celiac is such a bind. I eat clean certified foods and still get hit by Cross contamination and low level build up.

My only sugar is the occasional Square of chocolate, and lara bars a few times a week. Im currently living on veg soup, that I batch make, canned sardines, and avocados. Im miserable and tough to be around.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
Geoff01 Apprentice
Geoff01
Posted
On 3/29/2018 at 4:21 AM, Moggy said:

 

Moggy, sounds like you ate a prepared, processed, quinoa meal. I suspect cross contamination.

Having said that, some quinoa strains have been tested as having levels of gluten or gluten like proteins that may cause distress. I assume that a Co preparing gluten-free meals would know this and would use safe strains.

Best way to test this will be to cook raw, unprocessed quinoa and try it with a simple home cooked gluten-free meal. I cook quinoa regularly and enjoy it. It’s one of my safe foods. 

On 3/29/2018 at 4:21 AM, Moggy said:

 

 

 

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Seeeye
    Newest Member
    Seeeye
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…                 
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      I’ve recently had bloods test due to fatigue. Iron was found to be low Serum ferritin level 4 ug/L so doctor sent for Coeliac test. Results have come back TTG ABS NUMERICAL > 250.0 U/mL is this a high reading? Am not waiting a Gastroenterology referral but this could take 10 weeks! This is all total new to me, didn’t think for a second I would have coeliac disease. Been advised not to change diet until seen by specialist 
×
×
  • Create New...