Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First few days of being gluten free - withdrawal symptoms?


shojam-

Recommended Posts

shojam- Newbie

Hi,

I am very new to the forum - I received my diagnosis of coeliac disease last week. I will admit it was a bit of a surprise, I don't feel I have had any symptoms at all, and my positive coeliac blood test only came about because my GP happened to order a range of blood tests during a period of high stress back in October (which lasted 2 weeks and then I felt back to normal).

 

Anyway, I started the gluten free diet last week following my meeting with the gastroenterologist... and since then, I have been feeling really depressed, fatigued and lethargic. It's hit me like a tonne of bricks. I haven't got the energy for anything, I feel low and on the verge of tears a lot... I just feel awful. Now, I know that a coeliac diagnosis is not the best news, so originally I wondered if I was just feeling low due to that... but it's been quite severe and quite unusual for me to feel like this.

I actually feel WORSE now than I did pre-diagnosis... and then this morning I suddenly wondered whether it could be some sort of gluten withdrawal. Is that a thing? Did anyone else experience this in the early days of their gluten free diet? I am on day 5 now, and am desperately hoping that this doesn't continue as honestly I am struggling to focus on my work, on life at home and it's making me feel terrible! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Oclanmama Newbie

It is kind of like going through a detox period. You can feel horrible, almost like flu type symptoms for up to a week. That is all the toxins in your body being disrupted. Just stay the course and don’t give in. It will pass and you will start to feel better within a week.  It can take 90 or more days for gluten to be gone, out of your system. 

kareng Grand Master
43 minutes ago, Oclanmama said:

It is kind of like going through a detox period. You can feel horrible, almost like flu type symptoms for up to a week. That is all the toxins in your body being disrupted. Just stay the course and don’t give in. It will pass and you will start to feel better within a week.  It can take 90 or more days for gluten to be gone, out of your system. 

Gluten doesn't hide in your "system".  It goes thru, just like all foods in a few days.  The antibodies that a Celiac makes, can take a long time to get to normal.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,753
    • Most Online (within 30 mins)
      7,748

    Kim Schardan
    Newest Member
    Kim Schardan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...