Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celia? Unable to Gain weight

Deb Dey

By Deb Dey
in Coping with Celiac Disease

Recommended Posts

Deb Dey Newbie
Deb Dey
Posted

Hi All,

I really need your help. I have been suffering from this strange disease. It started 1 year ago when my weight was 56 KG (32 years, male).

I started having bloating and started pooping (absolutely normal) pooping 3 to 4 times a day. I lost 16 kgs weight over the time.

Now after this 1 year, all my problem has subsided. I have almost zero bloating, no pain anywhere. But sometimes I poop 2 times a day and that is more than what I eat I think.

The main problem, my weight is not changing no matter what.

One doc is saying I have IBS, another is saying I have celiac and the 3rd and the last one is saying I have Crohn's.

What could be the reason I am unable to gain weight no matter how hard I am try.

Currently, I am taking only lactobacillus pro biotic to heal my gut.

Any help, any suggestion will be immensely appreciated.

Should I buy a plant-based protein supplement?

Kind regards

deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted
3 hours ago, Deb Dey said:

Hi All,

I really need your help. I have been suffering from this strange disease. It started 1 year ago when my weight was 56 KG (32 years, male).

I started having bloating and started pooping (absolutely normal) pooping 3 to 4 times a day. I lost 16 kgs weight over the time.

Now after this 1 year, all my problem has subsided. I have almost zero bloating, no pain anywhere. But sometimes I poop 2 times a day and that is more than what I eat I think.

The main problem, my weight is not changing no matter what.

One doc is saying I have IBS, another is saying I have celiac and the 3rd and the last one is saying I have Crohn's.

What could be the reason I am unable to gain weight no matter how hard I am try.

Currently, I am taking only lactobacillus pro biotic to heal my gut.

Any help, any suggestion will be immensely appreciated.

Should I buy a plant-based protein supplement?

Kind regards

deb

First you need to get properly tested for celiac disease, you have to gluten daily for 12 weeks for the test to be accurate, please read.
Open Original Shared Link
I have been trying to body build with celiac for a few years, it can be difficult but a few things I have found, is first off plant based protein powders are better and easier on the gut. Blends like MRM Veggie Elite, and Nutra Key V-pro were good (I do custom blends now). Pea protein is high in several key amino acids and iron, Naked Pea and Growing Naturals are my top pics here. Pumpkin Protein is great for recovery and high in zinc, Jarrow is the best priced and top pick for pure, Julian Bakery has a nice cinnamon twist pegan. Sancha Inchi Seed is another good one, you can get it from Julian as unflavored pegan, or MRM makes it. For a nutrient add in targeted for celiac try Pioneer Labs Celiac complete meal, it has some stuff to be easier on the gut, try having a scoop with your meals. ALSO eat plenty of fats like almond butter, avocado, etc. I went to a ketogenic/paleo diet to managed another disease but has enabled me to put on a few lbs of lean muscle since doing it and I feel much better.

Digestive Enzymes can help you get more nutrients from your food and ease digestion, and snacking on nuts, protein shakes (I use coconut milk based high fat ones), or protein bars like Julian Bakery bars between meals can help,
Might consider supplementing b-vitmains, vitamin D, etc.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    3. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    4. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    5. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,367
    • Most Online (within 30 mins)
      7,748
    Pauline14
    Newest Member
    Pauline14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.