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Does this look like DH? Pics included

Txash

By Txash
in Dermatitis Herpetiformis

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Txash Newbie
Txash
Posted

So about a week ago, I decided to go gluten free to see if it would help with any of the health issues ive been having. I was mostly hoping it would help with my chronic migraines, and I really think it has been. In fact, ive been feeling better than i have in a long time. My energy has been through the roof and my anxiety has decreased.

About four days into gluten free, I started breaking out in this itchy rash. The only cause ive been able to think of is my daughter had being eating kit kats candy in bed, and while dusting off the crumbs into the floor I picked a bigger crumb up and ate it. I wasnt even thinking. Rash started within thirty minutes. When i compare it to pics of DH it looks similar. It has small pimply blister looking things. 

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I have been tested for celiac two years ago and it was negative. I also dont carry either of the two celiac genes, which is what really makes me doubt its DH. It itches like crazy though. I took some benedryl last night and i think it helped the itching, but did nothing for the actual rash. Can my body just become sensitive to wheat/gluten now that I cut it out since I dont have the celiac genes? I would so appreciate opinions from those more experienced with all this. Thanks in advance!

 

 

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

Just because you tested negative 2 years ago that doesn't mean you wouldn't test positive now. Also there are other genes associated with celiac than the 2 for which they commonly test. I presented with DH and neuro symptoms for years before GI issues became severe and I am a double DQ9.

Your rash could be DH. It could also be another form of skin impact. DH is very itchy and will appear bilaterally. I couldn't tell from the pics if you have it on both sides of the body or not. If you can get into a derm while the rash is active they can biopsy the skin next to an active lesion to test for DH. They do need to be looking for DH to find it as it needs specialized testing processes.

Ideally you should go back on gluten and get bloodwork done again. Your insurance company may balk at that as well as your doctor but it is worth a shot if you need or desire a formal diagnosis.

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