Doctors Tomorrow

[Moyni]

Hi all,

I’m off to the GP tomorrow to ask about Celiac, but I thought I would share my story so far and see what others think.

I was diagnosed in 2005 with IBS after getting bad stomach pains, bloating and the usual changes in stools, they did tests (scans, blood, stool etc) and did spot one of my liver function levels were high, but it went down after a few weeks so I got the IBS diagnosis, I don’t remember if they tested for Celiac though.

About 5 weeks ago I started to get bouts of feeling a little sick and getting slightly light headed, also bloated and needing the loo. They appeared to happen after I had been to a work meeting and had a working lunch which contains a lot of sandwiches and cakes etc (which I don't normally eat).

Having looked back at my messages to my wife, it also happened once earlier in June, the day after another work lunch and my birthday cake.

Thinking that gluten could be triggering my IBS, I stopped eating gluten (I know now this may not have been the best thing to do). After about 7 – 10 days I felt a lot better, I still got a little nausea but my ‘stools’ were as good as they have ever been, and I had no bloating etc.

We went on holiday and I ended up eating gluten, the symptoms returned, so after the holiday I stopped again and again after 10 days or so things were looking better, still some nausea but in myself I was good, able to run 6K etc etc.

I then found the celiac website (whilst googling all sorts of other things like pancreatic cancer etc and getting myself very worked up… I still am a bit tbh) and did the self assessment. This said I should go get tested, so I made the appointment and read that I need to continue to eat gluten, which I did on Saturday…. That didn’t go well. Felt really bad after, worse nausea, light headed, my tinnitus got a lot worse (without noticing, it had got better when off gluten), and almost feeling like I was starting with the flu.

So here I am, felt nauseous this morning again, read the advice for tomorrow, and I had missed the bit about needing to have eaten gluten for 6 weeks before the test…. Ahhhh that won’t be fun.

 Anyway, assuming my anxiety isn’t right and this isn’t something nasty, and the bread then ill had been a coincidence, my body appears to have decided it doesn’t like gluten and I either have celiac, or its causing my IBS to flair.

Anyone else had a similar story?

[cyclinglady]

There are over 200 symptoms for celiac disease.  Best to get tested as symptoms for celiac disease overlap with other illnesses.

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I hope you feel better soon!