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BeckyF

Just been diagnosed and struggling

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Hi, this might be a long post but really needing some help and advice...So I'm new to this disease and have only been told a week ago by my GP it's highly likely I've got Coeliac disease and will be having a biopsy to confirm this in November. I've been gluten free since a week prior but accidentally severely glutened myself over the weekend before last with a few foods I thought were safe. I've been off work loads since symptoms started kicking in in April this year and have now been off work for the last two weeks due to the severe pains from being glutened. It's given me terrible anxiety, depression and despite genuinely wanting to get back to work I cannot get out the house without nearly throwing up repeatedly and having severe pains in my stomach most mornings. I've used paracetamol, peppermint tea, hot water bottles and even had my husband massaging my abdomen to try move what feels like trapped gasses around. Massaging it has worked in the past but other times (more recently) not so much. Back in April, I was planning my wedding for July this year (4.5 months to plan everything was rather stressful to say the least) and I don't know if that triggered off my symptoms and coeliac would have just come out another time in my life. I would say I've suffered with anxiety since my early teens, I used to have IBS when I was very young, and have never had good energy levels. I don't know if this means I've had Coeliac for years and only just now it's come to the fore?  We've been super strict over this last week but I'm still very anxious, exhausted, weak, nauseous and in a lot of pain that has kept me awake at night. It might be worth mentioning I live on a working farm that works mostly with wheat, rye and barley. Will living here have a negative effect on my health? How long does it take for symptoms to clear up and to feel 'normal' again? Is it normal to have this much pain that I'm bent over a LOT of the time, nearly throwing up but never actually able to and almost instantly in pain and severely bloated after eating most meals? What's helped you all get back in control of your health and life? Has anyone has symptoms like mine? Any advice, or even if others have had a similar experience to what I've described would be great just to know I'm not alone or if there's something I should be doing that will massively help me?? 
Thanks,
Becky 

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Welcome!  

You might try the search button on the forum.  I found this thread to get you started:

https://www.celiac.com/forums/topic/52692-farming-with-celiac/

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

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OK, first welcome, second might do good to check the newbie 101 thread.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
Now about the testing.....you do know you have to be eating gluten every day for the testing? The biopsy test will require you to be eating a slice of bread a day for 2 weeks prior. A blood test much longer but you already knocked that out.

About living on the farm....I hate to say this but if they have wheat dust from the grain in the air...your going to have to move. Air borne flour can be inhaled and gets trapped in the mucus in our nose and throat then drains down into our stomach/digestive tract where it triggers a gluten exposure and antibody reaction. Flour dust can be airborne for over 24 hours when used in a bakery or kitchen environment. As to the farm...I honeslty do not know what your prospects are of having ground wheat kernel in the air. They make pollution mask like Respro brand I have used the Sportsta and Techno when I go shopping...our stores have open bakeries around here and sometimes I would feel sick after getting home, it stopped when I took this precaution. I am also allergic to corn so there is is that lol.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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