Constantly tired

[Christine McMahon]

Hi, I found out I was celiac after tests cause I was feeling exhausted all the time.

I've changed my diet and followed doctors advice. But I'm still exhausted all the time, to point it takes me hours to work the energy to even wash up.

Been tested for vitamin deficiencies, all negative apart from vitamin D which I am taking supplements for.

Just wondering if this is a celiac ailment or is there anything I can do to help me get more energy, I'm at my witts end with it.

TIA

[cyclinglady]

19 minutes ago, Christine McMahon said:

Hi, I found out I was celiac after tests cause I was feeling exhausted all the time.

I've changed my diet and followed doctors advice. But I'm still exhausted all the time, to point it takes me hours to work the energy to even wash up.

Been tested for vitamin deficiencies, all negative apart from vitamin D which I am taking supplements for.

Just wondering if this is a celiac ailment or is there anything I can do to help me get more energy, I'm at my witts end with it.

TIA

When were you diagnosed?  It can take up to a year to recover on a gluten free diet (steep learning curve).  Has your thyroid been tested?  Hashimoto’s Thyroiditis  (high thyroid antibodies) is commonly linked with celiac disease.  

[Christine McMahon]

19 minutes ago, cyclinglady said:

When were you diagnosed?  It can take up to a year to recover on a gluten free diet (steep learning curve).  Has your thyroid been tested?  Hashimoto’s Thyroiditis  (high thyroid antibodies) is commonly linked with celiac disease.  

Diagnosed in January, yes I've had my thyroid tested.

[cyclinglady]

Ferritin (iron stores) levels normal?  Anemia ruled out?  Were your thyroid antibodies actually tested or just thyroid function (e.g. TSH)?  Any follow up testing for celiac disease?  This can help rule out if your celiac disease (antibodies decreasing or normal) is actively flaring.  

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[Christine McMahon]

Unsure what was tested with thyroid test,  anaemia ruled out, had blood test last week to see if there was any gluten but was told it was good, got to go back to doctors next week so you have given me some questions to ask. Thank you.

[Ennis-TX]

Amusingly with the damaged intestines we can be deficient in stuff like B-vitamins, Magnesium along with vitamin D  and other things Iron, vitamin A etc. Testing just in range can even be a sign we are low..heck you can be low in some b-vitamins and not others and they work synergistic together. I found supplementing regardless perked me up a bit....I did some other changes to diet also. Look up deficiencies for the other B-vitamins and magnesium and see if you show any other signs. Or just try supplementing.

Other things to consider keep a food diary, and go to a whole foods only diet, and try rotating your foods, if you got a slight intolerance, allergy, or food sensitivity then it will bog you and your whole system down. Make sure to keep it balanced.

 

[pikakegirl]

I found out I was MTHFR positive meaning I am not converting folic acid in foods. Also trouble absorbing B12 though that blood was normal. I am taking the methyl forms of these and have loads of energy now but the early years were exhausting because of healing. I wish I had nutritional help then. I bought Live wise liquid B12 methyl form and Life Extenstion Lmethylfolate. I take 3000k because I was low and read how folate helps with depression and I do feel lighter emotionally. Also B6 P5P is the broken down easily digested form. I do my gluten free vitamin shopping on Amazon. Helping your body absorb and digestas it heals is vital. I also found probiotics helped me breakdown veggies and the FODMAP diet of eliminating certain foods stopped my gas. Sending healing thoughts.

[Posterboy]

8 hours ago, Christine McMahon said:

Just wondering if this is a celiac ailment or is there anything I can do to help me get more energy, I'm at my witts end with it.

 

5 hours ago, Ennis_TX said:

Amusingly with the damaged intestines we can be deficient in stuff like B-vitamins, Magnesium along with vitamin D  and other things Iron, vitamin A etc. Testing just in range can even be a sign we are low..heck you can be low in some b-vitamins and not others and they work synergistic together. I found supplementing regardless perked me up a bit....I did some other changes to diet also. Look up deficiencies for the other B-vitamins and magnesium and see if you show any other signs. Or just try supplementing.

Other things to consider keep a food diary, and go to a whole foods only diet, and try rotating your foods, if you got a slight intolerance, allergy, or food sensitivity then it will bog you and your whole system down. Make sure to keep it balanced.

 

Christine,

If IDA has been ruled out then Ennis_tx has given you good advice.

It is not directly a "Celiac thing" but it is common in Celiacs because we lose our ability to absorb critical vitamins and minerals (nutrients).

It is a chicken and egg thing?  Did the Vitamin/Mineral deficiency come first causing the fatigue or did celiac come first causing us to be low in nutrients.

Only supplementing will answer that question?  Or good quality Vitamin testing . .when can be  hard to determine even today because the RDA are set so low that even when we test normal supplementing often still helps us!

But Celiac's often need higher amounts than the "average person' because we have absorption limitation issues often. . . again the chicken or the egg?

Or the levels set as the RDA are artificially low.  .. meaning disease though you show normal  you can still/have problems. . . that only supplementing can help (at least for a cycle).  You won't forever take a B-complex or Vitamin D etc. if this helps you for example in 6 months etc.

Take this case for example of people who tested low (Normal) for IDA but where still helped by Iron supplementation.

The study comes to us from Japan.

These people had Iron Deficiency without Anemia and it caused Fatigue and Anger problems.

Here is the research entitled "Iron Deficiency Without Anemia Is Associated with Anger and Fatigue in Young Japanese Women"

https://link.springer.com/article/10.1007%2Fs12011-014-9963-1

There is similar research about Iron and B-6 entitled "Low serum concentrations of vitamin B6 and iron are related to panic attack and hyperventilation attack." but that does not mean they had IDA but supplementation helped their panic attacks etc. . .much like Magnesium Citrate helped my Chronic Fatigue and Muscle Cramps etc. . . with supplementation.

https://www.ncbi.nlm.nih.gov/pubmed/23603926

Or this case study on Magnesium which helps fatigue and energy issues too! but rarely do people test low for it!

See this research entitled "Why all migraine patients should be treated with magnesium." and I would all Chronic Fatigue Syndrome people should be treated/supplement with Magnesium to rule out the chicken or egg issue?

They explain it well so I will quote them.

Here is the link to the research https://www.ncbi.nlm.nih.gov/pubmed/22426836

Here is their entire abstract.

 

Why all migraine patients should be treated with magnesium.

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Abstract

Magnesium, the second most abundant intracellular cation, is essential in many intracellular processes and appears to play an important role in migraine pathogenesis. Routine blood tests do not reflect true body magnesium stores since <2% is in the measurable, extracellular space, 67% is in the bone and 31% is located intracellularly. Lack of magnesium may promote cortical spreading depression, hyperaggregation of platelets, affect serotonin receptor function, and influence synthesis and release of a variety of neurotransmitters. Migraine sufferers may develop magnesium deficiency due to genetic inability to absorb magnesium, inherited renal magnesium wasting, excretion of excessive amounts of magnesium due to stress, low nutritional intake, and several other reasons. There is strong evidence that magnesium deficiency is much more prevalent in migraine sufferers than in healthy controls. (though) Double-blind, placebo-controlled trials have produced mixed results, most likely because both magnesium deficient and non-deficient patients were included in these trials. This is akin to giving cyanocobalamine in a blinded fashion to a group of people with peripheral neuropathy without regard to their cyanocobalamine levels. Both oral and intravenous magnesium are widely available, extremely safe, very inexpensive and for patients who are magnesium deficient can be highly effective. Considering these features of magnesium, the fact that magnesium deficiency may be present in up to half of migraine patients, and that routine blood tests are not indicative of magnesium status, empiric treatment with at least oral magnesium is warranted in all migraine sufferers."

And I would say the same for chronic fatigue!

Magnesium Citrate 3/day really helped me with fatigue, muscle cramps, energy, dreams and depressed moods.

But supplemented proves cause and effect or least casually associates the outcome even though modern (lower) limits do not recognize the many wonderful benefits of Magnesium in the body.

This is true because Magnesium is neeeeeeeeded! by the body to complete the Krebs cycle aka think as Photosynthesis is to the plant the Krebs cycle is to the animal.

And Magnesium is even more critical still than that . . . it is the chlorophyll essentially.

A B-complex is also very helpful because several B-Vitamins are also needed for us to make energy.

Don't quote me on this but I think I am correct in saying

B1- Thiamine, B2 - Riboflavin, B-3 Niacin(amide) and B-6 is also needed to complete the Krebs cycle.

See this research that also links B-1 (Beri Beri) a Thiamine deficiency to chronic fatigue entitled "Thiamine and fatigue in inflammatory bowel diseases: an open-label pilot study"

Here is the link/research https://www.ncbi.nlm.nih.gov/pubmed/23379830

But I will quote their conclusions.

"The absence of blood thiamine deficiency and the efficacy of high-dose thiamine in our patients suggest that fatigue is the manifestation of a thiamine deficiency, likely due to a dysfunction of the active transport of thiamine inside the cells, or due to structural enzymatic abnormalities. The administration of large quantities of thiamine increases the concentration in the blood to levels in which the passive transport restores the normal glucose metabolism in all cells and leads to a complete regression of fatigue."

And NOTE this was not a study on Beri Beri a Thiamine Deficiency but on Chronic Fatigue in IBS........though being low in B-1 (Thiamine) and a favorably response to supplementation is the classic definition of Beri Beri not IBS or Chronic Fatigue Syndrome.

But if Thiamine (/ B-complex has Thiamine in it) or Magnesium Citrate helps you then you had an undiagnosed celiac triggered Vitamin/Mineral Deficiency.

And I found supplementing with a B-complex and especially Magensium Citrate almost completely eliminated my Chronic Fatigue even before I received my Celiac diagnosis.

I asked this question in a posterboy on celiac.com blog post I wrote. It might help you to read it (if this doesn't make sense to you).

https://www.celiac.com/blogs/entry/2161-time-for-a-vitamin%C2%A0reformation-why-all-the-hate-for-vitamins-these-days/

But you only need to if your are trying to do more research and don't want to take the Magnesium Citrate and B-complex on me and Ennis_tx recommendation(s).

I just ask that you read the research for your self and see if you don't come to the same conclusion.

Good luck on your continued journey.

I hope this is helpful but it is not medical advice.

I must stop for now but I do  hope this is helpful and you if you want to read other threads on Magnesium just search for Ennis_tx or the Posterboy on celiac.com and you will find many threads that should be helpful too you!

OH and Knitty Kitty has a lot of good information/threads on Vitamin D!  Or just good research/nutrition issues in general.

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things”

Posterboy by the Grace of God,

 

[Christine McMahon]

Thank you for this post it has given me some good insight and hopefully some answers especially about magnesium as I have suffered with crippling migraines since my teen's, so I think vitamins is my best route,

Thank you for all your help 

Christine.

[Reindeer1]

Hi,

I was having the same issue, always tired couldn't get off the couch etc. I was watching tv one day, feeling so tired, and someone was talking about celiacs and how many people with celiacs are also allergic to SOY. I got up and checked all of my vitamins and they all contained soy. I stopped taking them and feel like a different person!!! I can now tell when I've had soy, to be honest soy makes me feel worse that gluten. Your problem may be soy allergy as well as gluten.