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Endoscopy Scheduled, been gluten-free


ajburns

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ajburns Rookie
(edited)

I have my Endoscopy -finally- scheduled for February 5th. Long road with some uninformed doctors. I've been gluten-free/DF for about 3 months. I know I have to do a Gluten challenge. Should I start today? How much Gluten per day Should I be having? And a month is enough for the endoscopy correct? How long do results typically take? My follow up with the doctor is February 20th, not sure it's enough time. And should I stick with eating gluten until this check up?

Also, should I go ahead and eat dairy again as well? I know it's definitely a problem because after accidentally having it recently I had some reactions. Or Should I mostly be concerned with getting the Gluten in my system?

Sorry for so many questions

Thank you!!

Edited by ajburns
To add a couple more questions

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ajburns Rookie

I could try to schedule for 2 weeks from now if that is enough time of eating Gluten if they need more time to process results?

frieze Community Regular

skip the dairy

cyclinglady Grand Master

If you can tough it out, go longer than two weeks as celiac centers differ between 2 and 4 weeks for a challenge.  Select all your favorite gluten-containing old foods.   No sense eating junk!   Eat at least 1 to 2 slices of bread a day (or equivalent).  You can stop eating gluten once you get the test results (in case a mistake is made).  You should be able to at least get something over the phone instead of having to sit for that follow-up appointment.  Discuss this with your doctor as it is up to him how he communicates test results.  Let him know if you become very miserable.  A challenge should be done under a doctor’s care.  

Skip the dairy if you know you will have problems.  Why potentially suffer more?  If you do have celiac disease, you may get dairy back.  I did!  

Good luck!  

ajburns Rookie

Thank you so much! I'll start immediately and try to stay away from the dairy still

QuietRowing Newbie

I'd recommend going as long as you can on the gluten challenge, more than 2 weeks.

I was in a similar situation a few months ago and only did 11 days of a gluten challenge but ended up with a negative endoscopy result. I don't think I had enough gluten for long enough (I had about a slice and a half of bread a day, on average). 

With a family history and a high positive blood test, I'm fairly certain I'm Celiac but now am in the  position of doing an extended gluten challenge to pursue the gold-standard diagnosis. If I could rewind the clock I would have eaten a lot more gluten during the first challenge. I now need to get a second positive blood test (after minimum 4 months of gluten eating) before the GI doctor will see me again for another endoscopy. I'm 2 months into the challenge and not enjoying it.

In terms of results turnaround - they told me the initial results of the endoscopy while I was still in the recovery room, but the results of the biopsy took 8 weeks to get to my family doctor. I'm in Canada though, so I imagine turnaround times could be quite shorter elsewhere.

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