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Doctor In Los Angeles

Edgar

By Edgar
in Doctors

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Edgar Newbie
Edgar
Posted

I've been experiencing symptoms of Glueten intolerance for the past 5years. It began after a bout of extremely strong anti-biotics for a sinus infection. It first showed up as dizziness and brain fog, then built progressively over the past 5 years to include a range of symptoms from depression, anxiety and lack of sleep to brain fog, dizziness and severe gastro problems.

It was an allergist who first suggested wheat allergies. I followed up with not one but two GI doctors in Los Angeles and Burbank. One suggested celiacs, another refused to even consider it. Niether did testing and the one who thought I was celiacs seems to have been reitred under odd circumstances (You could say I've seen three GI guys. One of this doctors partners their practice saw me when I did a return visit and insisted the diagnosis of celiacs was a mistake).

I've been kind of floundering on my own since. I'd love a recommendation for a good GI doctor in Los Angeles who has experience with celiac disease.

I've been seeing a nutritionist for help. Aside from being a great accupuncurist, I haven't really gotten much help from her. She keeps prescribing enzymes and things designed to increase acid production. These only seem to make things worse. I know I feel better when I've been able to avoid glueten for even a few days but the symptoms are getting worse so I've resolved to get aggressive about diet and treatment with the new year. Suggestions for doctors in town are sincerely appreciated.

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uclangel422 Apprentice
uclangel422
Posted

I live in Sherman Oaks and I see Dr. Michael Hirt, he is a general internal medicine guy and he diagnosed me.

I also work in Burbank at a hospital and for G.I. guys, Dr. Kerry Weiner is supposed to be the best.

Edgar Newbie
Edgar
Posted
  • Author

I'm a little dubious about Dr. Weiner. It was a partner in his practice that refused to test me and insisted there was no such thing as a food allergy.

Edgar Newbie
Edgar
Posted
  • Author

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

nathela Rookie
nathela
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

I live in Los Feliz, in Los Angeles. I am also looking for a good celiac GI specialist in the area. So, if you like the new doctor, can you let me know? Thank you. I am going to research on naturepath.com... I heard it might be helpful. :)

uclangel422 Apprentice
uclangel422
Posted

I am so sorry that that happened to you with someone affiliated with my hospital. Thanks for telling me about that too, i will stay away from them if i ever need any GI work done.

  • 3 years later...
rpinette Newbie
rpinette
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

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nasalady Contributor
nasalady
Posted
Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Pietzak is exclusively a pediatric doctor, as far as I know. She wouldn't even see my little girl and had her seen by a younger GI doctor (Collins) at CHLA. We do like Dr. Collins, but even though Emma's DNA test revealed HLA DQ2, she wouldn't order a biopsy because Emma's bloodwork was negative. The celiac panel is notoriously inaccurate in young children. I put Emma on the gluten free diet and her eczema disappeared and she started to gain weight.

I saw Dr. Peter Rosenberg in Pasadena. He took me seriously and is a good listener. I think he's the best GI doctor that I've seen.

The only negative I have to report is that when my husband saw him recently (my husband has DH, which I've understood from this board to be an automatic diagnosis of celiac disease), he said that he wasn't convinced that Paul had celiac and wants him to have the celiac panel run even though he's been gluten free since JANUARY. I was surprised by this, because Rosenberg seemed to be up on the latest celiac research.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
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    • knitty kitty
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