Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still have symptoms, related to something else?


ebutton

Recommended Posts

Wheatwacked Veteran
On ‎4‎/‎29‎/‎2019 at 6:54 PM, Posterboy said:

Folic Acid can be a problem for some...and why it is hard to generalize....

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced
7 hours ago, Wheatwacked said:
6 hours ago, Wheatwacked said:

I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

thanx for the recipe!  I gotta wait for my cukes to grow, now...  we make our own sauerkraut - super easy and delicious.  and you get that extra probiotic boost from lactofermentation.  also, cheap :) is my middle name :D 

your story:  same ha ha that's how I got my screen name.  surely, notme!  I went through another few months of denial before I pulled the trigger on the strictly gluten free diet.  like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

 

Posterboy Mentor
7 hours ago, Wheatwacked said:

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.

Wheatwacked,

I agree with you it is well documented...just not well accepted or understood.

It (Folic Acid) is added to gluten containing breads ...enriched flours ...why does it need to be enriched to be good enough for human consumption??? One might wonder?

My point about Magnesium ...is it complimentary to your Lithium regimen ...as long as you take your Lithium and Magnesium with different meals.

I have actually taken Lithium Orotate mainly to see if it would help my blood sugars (and it did some but do not take it now)...I think you are taking it right ...in low doses.

But I don't like the way Lithium interferes with Magnesium...

https://link.springer.com/chapter/10.1007%2F978-1-4612-3324-4_10

when I found Magnesium, Vitamin D (to a lesser degree) and Niacinamide ...I cured my depression issues. ..because these Vitamins/Minerals are used in every cell in the body via the Krebs cycle or (as part of the Vitamin D receptor in each cell)... concerning the krebs cycle think photosynthesis/chlorophyll for plants and you  have an idea.

Getting people to try them is another story!

see this recent research on a Vitamin dependency (not deficiency) and treatment of Bi-Polar patients.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5852710/

since it is so new...it will take another 10 or 15 years for doctor's to accept and use it in their practices (they are called practices for a reason).

He (this) doctor studied this effect in his patient(s) for over 10+ years before publishing his research in a clinical journal.

I hope this is helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
8 hours ago, Wheatwacked said:

https://www.greatplainslaboratory.com/articles-1/2017/1/23/lithium-the-untold-story-of-the-magic-mineral-that-charges-cell-phones-and-preserves-memory

 

I started using zinc, specifically Cold-Eze in 2004, when my wife was diagnosed with Ovarian Cancer and said if I got a cold I had to move out because of her chemo. Have not had a significant cold since. I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

Wheatwacked,

I found similar research (like your lithium research) about Selenium that could help people  that nobody seems to know about ...about it's role in cancer regulation. .. and the level of trace Selenium in well water.

https://www.naturalnews.com/016446.html

I prefer to use natural foods and Vitamin supplements (when appropriate) to help manage my health issues.

Luckily Selenium is easily available from Brazil nuts.  Selenium is good for thyroids too!

I had a friend with a Selenium deficiency once .. .though rare ... especially  with a difference food supply today it is uncommon...but when one eats' most of their foods from a selenium (nutrient) poor soil ...it can happen.

I shared my research/experience with them but I don't think they listened .. .now I am trying to  help their husband with IBS.

Wish me luck ...I am going to need it. . .advocating supplementation is not as easy it  (convincing others) sounds (nor is eating healthy hard) as I am sure you now from your Pickle recipe...so simple a thing understand but so hard for (other) people to grasp sometimes.

Try the Magnesium Glycinate and I think you will be glad you did!

I hope this is helpful but it is not medical advise.

Posterboy,

Posterboy Mentor
1 hour ago, notme! said:

like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

Notme!,

This might help you ...I was thinking of Cyclinglady when I ran across this but might also post in another place because she mentioned in another context.

https://hypothyroidmom.com/autoimmune-patients-have-you-heard-of-th1-and-th2-dominance/

http://www.jneuropsychiatry.org/peer-review/the-significance-of-proinflammatory-cytokines-and-th1-th2-balance-in-depression-and-action-of-antidepressants.html

the more I study about how our immune system(s) work I am more convenienced this proinflammatory state is behind a lot of unexplained sickness(es) today.

I hope this is helpful but it is not medical advice.

Posterboy,

notme Experienced

I didn't ask for help.  I feel great and I have my oil checked about every 3 months.  I don't have any psychiatric problems that I am aware of.  all my thyroid numbers are fine and I am aware that as a woman post menopause with an already existing autoimmune disease, I am expecting to keep an eye on my thyroid.  my vitamins levels get checked every doctor visit as I said earlier:  I used to be, most recently, vit b12 and D deficient, but that has self corrected.

I have celiac disease.  it is treated by strictly adhering to a gluten free diet.  the reason I mentioned my son and daughter is, that, it cemented my diagnosis and reaffirmed that I do, indeed, have the dreaded autoimmune gene.  if this statement helps someone stick to their diet because it is the only treatment and someone else in their immediate family has an ai disease, then I feel like I helped someone on a celiac forum.  in a celiac world that is also gluten free :) 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,716
    • Most Online (within 30 mins)
      7,748

    AnnaBananza
    Newest Member
    AnnaBananza
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SB04
      Thanks! I don't think it was a total IGA test, it was called "Array 3X - Wheat/Gluten Proteome Reactivity & Autoimmunity" and it tested a bunch of wheat proteins and transglutaminase for both IgG and IGAs.  
    • trents
      Welcome to the forum, @SB04! Let's cut to the chase. Did they run a tTG-IGA and a total IGA? Total IGA goes by many names but it checks for IGA deficiency. If you are IGA deficient, IGA test scores will be artificially low and it can result in false negatives. The tTG-IGA is the centerpiece of celiac disease antibody testing.  Dermatitis herpetiformis is the epidermal expression of celiac disease. Most who have dermatitis herpetiformis also have damage happening to the small bowel lining as well but a small percentage do not. But dermatitis herpetiformis has a characteristic appearance to it, with the rash bumps having pustules in the center. It is also accompanied by a very uncomfortable itch. From what you describe, your rash doesn't sound like dermatitis herpetiformis. The IGG antibody tests are not quite as specific for celiac disease as are the IGA tests but they aren't terrible either. This may be helpful:   
    • SB04
      Hi all, about a year ago I had some blood tests done through a naturopath because I had constant hives and no idea why. They would go away for a few days with an antihistamine medicine but always come right back. Anyways, she did an igg test (which i now know is terribly unreliable) and it was pointing to gluten sensitivity. there was another test too, that tested for wheat iggs, igas and several other things, among which were Transglutaminases. The only one that came up as high for me was the tTG3 igg result, which shows an autoimmune response in the skin, commonly dermatitis herpetiformis in celiac patients. I was told it was gluten causing it but not celiac. Fast forward to now, I still have hives, I've been gluten free (although I have no reation to gluten when I accidentally have it), and I've been doing research to try and figure out what is wrong. I've heard that those initial igg tests are unreliable, and that maybe gluten isn't the issue, but from what I've read it sounds like the Transglutaminase tests are very reliable? I'm wondering if I somehow got a false positive, because I definitely don't have dermatitis herpetiformis or any typical celiac rashes. Has anyone had a similar experience?
    • knitty kitty
      I know I'm late to the party, but I thought these articles are very interesting.   Doctors don't recognize vitamin deficiency symptoms.   Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation.   Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/   Vicious cycle of vitamin B1 insufficiency and heart failure in cardiology outpatients https://pmc.ncbi.nlm.nih.gov/articles/PMC11579856/   Micronutrient deficiencies and new-onset atrial fibrillation in a community-based cohort: data from PREVEND https://pmc.ncbi.nlm.nih.gov/articles/PMC11772465/   Spontaneous Recovery of Isolated Advanced Heart Block in Patient with Celiac Disease by Starting a Strict Gluten Free Diet: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC10482138/   The Efficacy of Vitamins in the Prevention and Treatment of Cardiovascular Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC11432297/   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].   Recovering from Long Covid with Thiamine https://hormonesmatter.com/recovering-from-long-covid-with-thiamine/ https://hormonesmatter.com/covid-19-thiamine-interview-with-dr-derrick-lonsdale/
    • knitty kitty
      @ohmichael, Have you tried contacting your state's Employment Services?   There should be job opportunities and training programs especially for previous service members and veterans.   Look into trade schools.  Some offer training programs which provide scholarships and housing, and possible employment after completion.  Some scholarships are funded by employers looking for specifically trained employees. Choose a career path in something you enjoy doing.   I agree with @Scott Adams.  Play your cards close to your chest.  Get your ducks in a row before discussing leaving the gluten aisle where you work now.  Managers can and will fire you really easily, like Scott said.   Prayers and Best Wishes sent.  Keep us posted on your progress!
×
×
  • Create New...