Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still have symptoms, related to something else?


ebutton

Recommended Posts

Wheatwacked Veteran
On ‎4‎/‎29‎/‎2019 at 6:54 PM, Posterboy said:

Folic Acid can be a problem for some...and why it is hard to generalize....

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced
7 hours ago, Wheatwacked said:
6 hours ago, Wheatwacked said:

I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

thanx for the recipe!  I gotta wait for my cukes to grow, now...  we make our own sauerkraut - super easy and delicious.  and you get that extra probiotic boost from lactofermentation.  also, cheap :) is my middle name :D 

your story:  same ha ha that's how I got my screen name.  surely, notme!  I went through another few months of denial before I pulled the trigger on the strictly gluten free diet.  like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

 

Posterboy Mentor
7 hours ago, Wheatwacked said:

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.

Wheatwacked,

I agree with you it is well documented...just not well accepted or understood.

It (Folic Acid) is added to gluten containing breads ...enriched flours ...why does it need to be enriched to be good enough for human consumption??? One might wonder?

My point about Magnesium ...is it complimentary to your Lithium regimen ...as long as you take your Lithium and Magnesium with different meals.

I have actually taken Lithium Orotate mainly to see if it would help my blood sugars (and it did some but do not take it now)...I think you are taking it right ...in low doses.

But I don't like the way Lithium interferes with Magnesium...

https://link.springer.com/chapter/10.1007%2F978-1-4612-3324-4_10

when I found Magnesium, Vitamin D (to a lesser degree) and Niacinamide ...I cured my depression issues. ..because these Vitamins/Minerals are used in every cell in the body via the Krebs cycle or (as part of the Vitamin D receptor in each cell)... concerning the krebs cycle think photosynthesis/chlorophyll for plants and you  have an idea.

Getting people to try them is another story!

see this recent research on a Vitamin dependency (not deficiency) and treatment of Bi-Polar patients.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5852710/

since it is so new...it will take another 10 or 15 years for doctor's to accept and use it in their practices (they are called practices for a reason).

He (this) doctor studied this effect in his patient(s) for over 10+ years before publishing his research in a clinical journal.

I hope this is helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
8 hours ago, Wheatwacked said:

https://www.greatplainslaboratory.com/articles-1/2017/1/23/lithium-the-untold-story-of-the-magic-mineral-that-charges-cell-phones-and-preserves-memory

 

I started using zinc, specifically Cold-Eze in 2004, when my wife was diagnosed with Ovarian Cancer and said if I got a cold I had to move out because of her chemo. Have not had a significant cold since. I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

Wheatwacked,

I found similar research (like your lithium research) about Selenium that could help people  that nobody seems to know about ...about it's role in cancer regulation. .. and the level of trace Selenium in well water.

https://www.naturalnews.com/016446.html

I prefer to use natural foods and Vitamin supplements (when appropriate) to help manage my health issues.

Luckily Selenium is easily available from Brazil nuts.  Selenium is good for thyroids too!

I had a friend with a Selenium deficiency once .. .though rare ... especially  with a difference food supply today it is uncommon...but when one eats' most of their foods from a selenium (nutrient) poor soil ...it can happen.

I shared my research/experience with them but I don't think they listened .. .now I am trying to  help their husband with IBS.

Wish me luck ...I am going to need it. . .advocating supplementation is not as easy it  (convincing others) sounds (nor is eating healthy hard) as I am sure you now from your Pickle recipe...so simple a thing understand but so hard for (other) people to grasp sometimes.

Try the Magnesium Glycinate and I think you will be glad you did!

I hope this is helpful but it is not medical advise.

Posterboy,

Posterboy Mentor
1 hour ago, notme! said:

like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

Notme!,

This might help you ...I was thinking of Cyclinglady when I ran across this but might also post in another place because she mentioned in another context.

https://hypothyroidmom.com/autoimmune-patients-have-you-heard-of-th1-and-th2-dominance/

http://www.jneuropsychiatry.org/peer-review/the-significance-of-proinflammatory-cytokines-and-th1-th2-balance-in-depression-and-action-of-antidepressants.html

the more I study about how our immune system(s) work I am more convenienced this proinflammatory state is behind a lot of unexplained sickness(es) today.

I hope this is helpful but it is not medical advice.

Posterboy,

notme Experienced

I didn't ask for help.  I feel great and I have my oil checked about every 3 months.  I don't have any psychiatric problems that I am aware of.  all my thyroid numbers are fine and I am aware that as a woman post menopause with an already existing autoimmune disease, I am expecting to keep an eye on my thyroid.  my vitamins levels get checked every doctor visit as I said earlier:  I used to be, most recently, vit b12 and D deficient, but that has self corrected.

I have celiac disease.  it is treated by strictly adhering to a gluten free diet.  the reason I mentioned my son and daughter is, that, it cemented my diagnosis and reaffirmed that I do, indeed, have the dreaded autoimmune gene.  if this statement helps someone stick to their diet because it is the only treatment and someone else in their immediate family has an ai disease, then I feel like I helped someone on a celiac forum.  in a celiac world that is also gluten free :) 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.