Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Still have symptoms, related to something else?


ebutton

Recommended Posts

Wheatwacked Veteran
On ‎4‎/‎29‎/‎2019 at 6:54 PM, Posterboy said:

Folic Acid can be a problem for some...and why it is hard to generalize....

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced
7 hours ago, Wheatwacked said:
6 hours ago, Wheatwacked said:

I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

thanx for the recipe!  I gotta wait for my cukes to grow, now...  we make our own sauerkraut - super easy and delicious.  and you get that extra probiotic boost from lactofermentation.  also, cheap :) is my middle name :D 

your story:  same ha ha that's how I got my screen name.  surely, notme!  I went through another few months of denial before I pulled the trigger on the strictly gluten free diet.  like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

 

Posterboy Mentor
7 hours ago, Wheatwacked said:

The MTHFR issue is documented well concerning folic acid, but not folate. Hence, the increased risk of prostate cancer with folic acid but not folate.

Wheatwacked,

I agree with you it is well documented...just not well accepted or understood.

It (Folic Acid) is added to gluten containing breads ...enriched flours ...why does it need to be enriched to be good enough for human consumption??? One might wonder?

My point about Magnesium ...is it complimentary to your Lithium regimen ...as long as you take your Lithium and Magnesium with different meals.

I have actually taken Lithium Orotate mainly to see if it would help my blood sugars (and it did some but do not take it now)...I think you are taking it right ...in low doses.

But I don't like the way Lithium interferes with Magnesium...

https://link.springer.com/chapter/10.1007%2F978-1-4612-3324-4_10

when I found Magnesium, Vitamin D (to a lesser degree) and Niacinamide ...I cured my depression issues. ..because these Vitamins/Minerals are used in every cell in the body via the Krebs cycle or (as part of the Vitamin D receptor in each cell)... concerning the krebs cycle think photosynthesis/chlorophyll for plants and you  have an idea.

Getting people to try them is another story!

see this recent research on a Vitamin dependency (not deficiency) and treatment of Bi-Polar patients.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5852710/

since it is so new...it will take another 10 or 15 years for doctor's to accept and use it in their practices (they are called practices for a reason).

He (this) doctor studied this effect in his patient(s) for over 10+ years before publishing his research in a clinical journal.

I hope this is helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
8 hours ago, Wheatwacked said:

https://www.greatplainslaboratory.com/articles-1/2017/1/23/lithium-the-untold-story-of-the-magic-mineral-that-charges-cell-phones-and-preserves-memory

 

I started using zinc, specifically Cold-Eze in 2004, when my wife was diagnosed with Ovarian Cancer and said if I got a cold I had to move out because of her chemo. Have not had a significant cold since. I finally went gluten-free Thanksgiving 2014, at age 63 as a Hail Mary and had immediate improvement for around 15 different symptoms that I was always told was either psychosomatic or just normal and I had to live with it. I should have listened in 1976 when my son was biopsy diagnosed and the doctor suggested I might benefit, but I had no gastrointestinal issues, so yeah: not me!

Wheatwacked,

I found similar research (like your lithium research) about Selenium that could help people  that nobody seems to know about ...about it's role in cancer regulation. .. and the level of trace Selenium in well water.

https://www.naturalnews.com/016446.html

I prefer to use natural foods and Vitamin supplements (when appropriate) to help manage my health issues.

Luckily Selenium is easily available from Brazil nuts.  Selenium is good for thyroids too!

I had a friend with a Selenium deficiency once .. .though rare ... especially  with a difference food supply today it is uncommon...but when one eats' most of their foods from a selenium (nutrient) poor soil ...it can happen.

I shared my research/experience with them but I don't think they listened .. .now I am trying to  help their husband with IBS.

Wish me luck ...I am going to need it. . .advocating supplementation is not as easy it  (convincing others) sounds (nor is eating healthy hard) as I am sure you now from your Pickle recipe...so simple a thing understand but so hard for (other) people to grasp sometimes.

Try the Magnesium Glycinate and I think you will be glad you did!

I hope this is helpful but it is not medical advise.

Posterboy,

Posterboy Mentor
1 hour ago, notme! said:

like you, some seemingly unrelated symptoms immediately cleared up.  I don't catch colds or flu anymore and I used to develop pneumonia every year and that quit happening.  my son has type 1 diabetes, my daughter has r.a. and is also celiac.  it's that pesky autoimmune gene.....

Notme!,

This might help you ...I was thinking of Cyclinglady when I ran across this but might also post in another place because she mentioned in another context.

https://hypothyroidmom.com/autoimmune-patients-have-you-heard-of-th1-and-th2-dominance/

http://www.jneuropsychiatry.org/peer-review/the-significance-of-proinflammatory-cytokines-and-th1-th2-balance-in-depression-and-action-of-antidepressants.html

the more I study about how our immune system(s) work I am more convenienced this proinflammatory state is behind a lot of unexplained sickness(es) today.

I hope this is helpful but it is not medical advice.

Posterboy,

notme Experienced

I didn't ask for help.  I feel great and I have my oil checked about every 3 months.  I don't have any psychiatric problems that I am aware of.  all my thyroid numbers are fine and I am aware that as a woman post menopause with an already existing autoimmune disease, I am expecting to keep an eye on my thyroid.  my vitamins levels get checked every doctor visit as I said earlier:  I used to be, most recently, vit b12 and D deficient, but that has self corrected.

I have celiac disease.  it is treated by strictly adhering to a gluten free diet.  the reason I mentioned my son and daughter is, that, it cemented my diagnosis and reaffirmed that I do, indeed, have the dreaded autoimmune gene.  if this statement helps someone stick to their diet because it is the only treatment and someone else in their immediate family has an ai disease, then I feel like I helped someone on a celiac forum.  in a celiac world that is also gluten free :) 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,004
    • Most Online (within 30 mins)
      10,442

    Bothy
    Newest Member
    Bothy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...