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Zelnorm

danikali

By danikali
in Coping with Celiac Disease

Recommended Posts

jenvan Collaborator
jenvan
Posted

Deb--

Something I'll mention again too... Metamucil and Citricel never helped me actually. It is only the real, natural psyllium I've had success with...

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loraleena Contributor
loraleena
Posted
Hi everyone! How are your holidays going?

I haven't written in a long time! Anyway, I reccently went to the famous Dr. Green in New York City for help with everything because I was having way too many problems to cope on my own and I was sick of the doctors that I've had not helping.

Anyway, he gave me zelnorm to help keep me regular. I've been taking it in moderate for the past few days now, but I'm very skeptical on medicine like this. Especially since this drug, specifically, is so new. Anyway, I'm sure some or most of you have come to this crossroad, so I have some questions:

1. Have you had any side effects on Zelnorm?

2. Do you know if you depend on this drug to go the bathroom, does it make it worse when you go off of the pill?

3. Is it like every other laxitive that eventually, you need to "up" the dose?

4. If you haven't taken it, and had the option to, why didn't you?

5. If you do take it, do you think it helps? Are there any bad aspects of it that you have noticed?

6. Anything else you might want to add about this drug?

Thanks guys! Even though I'm going to the suposed expert of Celiac Disease, I know I can always depend on this forum to give me honest, helpful and "real" answers, more than any doctor.

I would be concerned about taking presription drugs. Western medicine is only concerned about covering up symptoms, not curing anything. These drugs usually have detrimental effects on other organ symstems. You may have other things going on such as candida overgrowth , parasites ect. You should read Natural Cures They Don't Want You to Know About.

julie5914 Contributor
julie5914
Posted

I can tell you what is BAD to eat. :D I have been in the emergency room for impaction. Great fun. So, if you are gluten free, you probably have no prob with this, but processed foods are killer. I used to eat frozen dinners all the time. That was when things were bad. Cheese was already mentioned - I think other dairy can be a culprit sometimes too. Carbs that aren't whole grain are really the bad guys. Pain meds are bad. I think Jen already listed everything imaginable that can help. :P

jenvan Collaborator
jenvan
Posted

Julie--impaction--wow, that is bad! glad you're okay now!

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Not to be grose, but I feel that I am the queen of constipation. :P I take Zelnorm 6 mg per day, colace (2 in pm at bedtime), and eat about 12 prunes each day, not to mention salads, fresh fruits and veggies and adding flax seed to everything I eat. Still, I only "produce" about once every 10 days. Because I have had IBS in the past -- but it was the don't go 3 days, then diarrhea for 3 days type -- then I told the GI doc who did my bloodtesting and biopsy about the change (it was at 6 months when I told him) (BTW: I'm celiac negative, but have gluten ataxia) -- he gave me the Zelnorm. I thought I had not noticed a difference and was complaining about that fact to my husband. Then, I ran out of my prescription and didn't refill it. I found that it did make a small difference (2-3 days less). The neuro doc is afraid it is because of decreased peristalsis in the intestines due to the neurological damage -- still have to find out about that. Have tried Metamucil, Citrucel and psyllium -- mostly made me bloated with gas! -- but still haven't found a good "remedy". Still going to stick with the Zelnorm, though -- something is better than nothing.

jenvan Collaborator
jenvan
Posted

tiredofdocs-

i am sorry to hear about all that... i've posted most of my ideas :) i will say i have a new psyllium that i really like--no D or gas etc....and the ones i had before did that...it seems to be 'gentle.' so you are 100% gluten-free? have you looked at other foods like dairy as a culprit? so you are going to follow-up on neuro damage?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Hi Jen! Haven't looked at milk as the culprit. Haven't had a milk allergy before, maybe need to explore it with food challenges, then testing. Thanks for the idea. I am a "dairy gal." As far as the neuro aspects, it's being explored ad nauseum, quite frankly. I'm really getting tired of all the tests, but still really need ideas -- what's a girl to do, huh? :)

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jenvan Collaborator
jenvan
Posted

Cking out dairy is worth a try...it def gives me C...and there are many others who get the same effects here.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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