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What Is The Purpose Of A Biopsy?

nathela

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nathela Rookie
nathela
Posted

:blink:

Last week, I was feelig so bad. :angry: MY GI wanted me to re-introduce gluten for an endoscopy. I had been so much in pain while I had gluten. I did not know what to think. Then, Peter. wrote a wonderful response to my post, with a lot of medical details. :P

We made the decision with my husband that I would not re-introduce gluten if I have a biospy. My blood test is igg 16 and iga 8. I am on a gluten-free diet for the last 3 months. ;)

Now, the question is to know: do I need a biopsy? How important is to know the statut of the small intestine to prevent lymphoma, cancer.....???? :o

I have been more tired since I went gluten-free. I have only 20% of my energy. Some days, I can work for 3, 4 hours. Other days, I can not move, washing my hair feels like running 50 mile marathon. :ph34r:

Of course, I am surprised to feel weaker than before. The improvement is that my pain is almost gone. (colon pain). But, I am still worried. This loss of energy, is so weird. I won't ever eat gluten again. I have the conviction that I am ceilac. Do you think that the Enterolab tests for genes, malabsortion and some York test for food allergies are enough to get better and to have a clear full understanding of the ceilac sprue? :huh: Thank you so much for all your support, this forum has changed my life!!!

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Guest jhmom
Guest jhmom
Posted

In my opinion a biopsy is not needed if you have positive blood tests or show an improvement in the gluten free diet. Some others may disagree but I know first hand that blood tests even biopsies are not 100% accurate. I was tested through Enterolab but that was after all other tests were negative, you could go that route but I think you already have your answers with the improvement and no pain.

I can't explain the fatigue it could be something totally different or it could be your body recuperating from being poisoned for so long. I do hope you feel a lot better soon, take care :)

Lisa Mentor
Lisa
Posted

I just go kicked off by spam (something to think about by the change in the system??)

Nathela:

I had the biopsy when I was feeling really bad and it showed a true positive for celiac. I am in full agreement with the Dr., that if you feel better going gluten free, then continue. I too wanted to call my infliction with a "name", but with the diet and health getting better, you can assume the name.

Since you have fatigue issues, please contact your doctor and request a full blood panel (they used to call it and executive panel) to test your levels of essential elements for your bodies heath. They will show all deficiencies regarding vitamines (I can never spell that word). That may be the source of your fatigue.

Hope this will be helpful.

Lisa B

Guest nini
Guest nini
Posted

I continued to have really bad fatigue until I started taking B-12... def. look into checking for vitamin deficiencies... that may be part of the cause of your fatigue. Since Celiac is a disease of malnutrition, you can bet that your body hasn't been absorbing essential nutrients for a long long time.

I would say you do not need the biopsy. It would only confirm if there is damage, but since you have been gluten-free for 3 months, your damage may already be healed... Positive blood work is proof enough for me.

julie5914 Contributor
julie5914
Posted

Hey,

It's been 6 months since diagnosis by super high blood work, and I have never had endoscopy. I'm like you, my digestive stuff is much better (unless there is an accident - then I want to curl up and die!) but I am very fatiqued. It's exactly as you said - simple things feel like running a marathon. And my vitamins have been checked and are not below limits. I haven't been sleeping as well as I used to, so I am starting to think maybe it is another food allergy (I've already cut out milk, but it could be something else too) or fibromyalgia. I'm getting my ANA looked at again too (this is a test to look for tissue disease).

I don't think endoscopy is necessary for diagnosis - I know I have Celiac. However, I'm considering having done since I am still having symptoms after six months and I would like to know what is going on in there (as in, maybe something in addition to Celiac). You never know. I will likely wait another 3 months until I pursue this though. I have recently had a gluten accident, which probably is making things seem 10x times worse right now.

SallyC Newbie
SallyC
Posted

Hello Julie,

You might consider telling the doctors to check your thyroid levels. This could be causing your fatigue and thyroid disease is associated with celiac.

Good Luck

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
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