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People With Joint/muscle Pain!


Lovinglife

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Lovinglife Rookie

Hello, I'm sure many of you are getting used to seeing my name associated with joint/muscle pain, stiffness and soreness :P . Hopefully that will soon be a memory.

QUESTION: Has anyone had joint pains and my other symptoms as well as a slightly abnormal Rheumatoid Factor and THEN became okay? As in symptoms are gone and never came back? PLEASE let me know.

Here's my story:

Apparently I have a gluten intolerance or Celiac Disease (this is suddenly in question, but that's another story) for over 4 years. I haven't been eating correctly out of ignorance and/or necessity. Fast forward, for the past almost two months I have had mild to severe joint/muscle pain, stiffness and soreness. I have been gluten and lectin free througout that time. Lately I have actually been experiencing normal hours, and almost full days without a high level of symptoms .

In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.


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Jnkmnky Collaborator
Hello, I'm sure many of you are getting used to seeing my name associated with joint/muscle pain, stiffness and soreness :P . Hopefully that will soon be a memory.

QUESTION: Has anyone had joint pains and my other symptoms as well as a slightly abnormal Rheumatoid Factor and THEN became okay? As in symptoms are gone and never came back? PLEASE let me know.

Here's my story:

Apparently I have a gluten intolerance or Celiac Disease (this is suddenly in question, but that's another story) for over 4 years. I haven't been eating correctly out of ignorance and/or necessity. Fast forward, for the past almost two months I have had mild to severe joint/muscle pain, stiffness and soreness. I have been gluten and lectin free througout that time. Lately I have actually been experiencing normal hours, and almost full days without a high level of symptoms .

In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.

Benzodiazapines can cause joint pain. It's not widely recognized to be a source of joint pain, but it is. For me the symptoms lasted months after only 14 pills.

key Contributor

My legs especially ached alot in the few months before finding out I had celiac. Then went away for months. THen I started getting gluttened alot in a two month period by accident and it came back. Now that I haven't had gluten. THey feel fine again. If I get gluten, then the pain in my legs comes back. It must be some kind of inflammory response for me I guess. I did go to the doctor, but started feeling better shortly after, so I didn't have anymore testing done. I think for me it is gluten and I am fine otherwise.

MOnica

lonewolf Collaborator
In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.

Do you mean Rheumatoid Factor or Sed Rate? I thought that the RF was either positive or negative, but the sed rate has a scale.

Liz

Silver-naki Rookie

I think for me it is gluten and I am fine otherwise.

MOnica

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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