Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One week Gluten free and not feeling great


GypsySoul

Recommended Posts

GypsySoul Newbie

Hi Everyone, 

I was diagnosed with Celiac Disease last Wednesday and immediately started my gluten-free diet. I’ve been feeling pretty uncomfortable in my own body for the last year with aches and pains ranging from my sides to my abdomen and dealing with lots and lots of belching bloating and gas. 

After discovering I had Celiac I was almost relieved to find an end to my pain and discomfort — gluten-free diet. However, I am less than a week in (I know it’s not much time) but my aches and stomach pains have become odder, now I get sharp pain on the sides of my stomach that last about one second and happen about twice a day. Yesterday I was really bloated again and the belching hasn’t seemed to have lessened too much. 

 

Is it too soon for me to expect my symptoms to get better? Are these all normal symptoms for people with celiac disease? Does it get worse before it gets better? I don’t personally know anyone with celiac so this group is really all I’ve got. Please help. 

 

Also, I’ve become a little nervous about having Crohn’s disease. I have been googling my symptoms and it also come up on the search engine. I really hope I’m just getting anxiety and not right about it. I just want to feel normal again in my own body... these issues started after I gave birth to my first 2.5 years ago. I am 27. 

 

Thank you! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  

It took time for you to attack your small intestine and it will take time to heal.  The gluten-free diet has a steep learning curve so expect a few setbacks.  Although the gut can heal within weeks, the reality is that it takes months to even a year.  I would not worry about Crohn’s.  Just focus on healing fro celiac disease.  

Research is your best defense,  Read through the forum to get valuable tips or ask questions.  

The one thing you will develop is patience.  ?

Ennis-TX Grand Master

Read the Newbie 101 thread to help you get started. Bunch of things you need to do to be sure your food and prep area is safe.


Best suggestion to jump in is to stop eating out, and cook all your food from scratch, avoid processed foods, and gluten free treats if you can (breads cookies etc) til you get this under control.

I have Ulcerative Colitis and Celiac (Male 29 here)...I had to adopt a paleo diet that was low carb/keto. Not for everyone but with my most recent flare I found I could get rid of the gas/bloat by going carnivore keto so there was no carbs to break down into gas. I think the bloggers like Ketologist and ketogenicgirl have some info on this. But I found I had to avoid all spices and use herbs to season everything. Been living on eggs, tuna, chicken, turkey bacon/sausage, pot roast meat, pan grilled meats, salmon, and fish for 3 weeks now. Although I still use avocado oil mayo or a bit of other condiments from Primal Kitchen in moderation most everything else is just meat. Oh and I am supplementing my normal stuff with C and K added in. -_- These carnivore people say to eat liver and organ meats to get them but I have not gotten a taste for those lol.

GFinDC Veteran
(edited)

Hi,

Yes, it is normal to have symptoms continue or even worsen some after going gluten-free.  That change is reflective of the healing process in the gut.  When your intestinal villi are flattened out, there isn't a lot of space for a healthy intestinal flora to habitate.  But as the gut starts to heal and the inflammation goes down, the villi will start to regrow.  That new surface area makes a lot more space for bacteria to colonize.  Bacteria can be very helpful but they can also cause symptoms.  Did you know your stool is 50% bacteria by weight?  It may help to avoid dairy and sugar and carbs during the first 6 months.

Edited by GFinDC

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...