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Celiac disease ??


Pattys117

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Pattys117 Newbie

My 16 year old son has been having stomach aches off and on for awhile but a lot more often in the past 2 months. We went o GI dr. He did bloodwork. All was normal EXCEPT Gliadin ( aga) IGG AB Levels which were quite high- 103.6 -should be under 20-25.

Is this a strong indicator of celiac or just possible a gluten intolerance?? As far as I know, there is no history in my family of celiac. Thank you for any input.


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Ennis-TX Grand Master

I am no doctor but you should probably see about following up with a full celiac panel including the other test, and see about getting a GI consult and perhaps a Endoscope with biopsies to confirm (would also give idea of any other issues in the stomach/intestines). Be sure your doctors are familiar with celiac as many of us struggled getting a diagnosis and wish it was done earlier.  Do keep him eating gluten daily til all testing is done.
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

While celiac is genetic it can skip generations and some do not show the standard symptoms and would only have known if a endoscope and biopsy was done. The disease has hundreds of symptoms and presents differently in people
 

GFinDC Veteran

Hi,

IMHO that is a strong indication of celiac disease as you called it.  You can ask the doctor to do the full celiac diseased antibodies panel also.  It is good to do all the antibody tests because some people react on only one antibody test and not others.  The other test they can do is an endoscopy where they take 4 to 6 biopsy samples for a lab analysis.   As Ennis said he needs to keep eating gluten until all the tests are done.  The test results are not accurate if he stops eating gluten.

RMJ Mentor

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

kareng Grand Master
59 minutes ago, RMJ said:

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

I think this part is important to remember - first to be diagnosed .  That doesn’t mean someone else didn’t or doesn’t have Celiac.

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