Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac disease ??


Pattys117

Recommended Posts

Pattys117 Newbie

My 16 year old son has been having stomach aches off and on for awhile but a lot more often in the past 2 months. We went o GI dr. He did bloodwork. All was normal EXCEPT Gliadin ( aga) IGG AB Levels which were quite high- 103.6 -should be under 20-25.

Is this a strong indicator of celiac or just possible a gluten intolerance?? As far as I know, there is no history in my family of celiac. Thank you for any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

I am no doctor but you should probably see about following up with a full celiac panel including the other test, and see about getting a GI consult and perhaps a Endoscope with biopsies to confirm (would also give idea of any other issues in the stomach/intestines). Be sure your doctors are familiar with celiac as many of us struggled getting a diagnosis and wish it was done earlier.  Do keep him eating gluten daily til all testing is done.
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

While celiac is genetic it can skip generations and some do not show the standard symptoms and would only have known if a endoscope and biopsy was done. The disease has hundreds of symptoms and presents differently in people
 

GFinDC Veteran

Hi,

IMHO that is a strong indication of celiac disease as you called it.  You can ask the doctor to do the full celiac diseased antibodies panel also.  It is good to do all the antibody tests because some people react on only one antibody test and not others.  The other test they can do is an endoscopy where they take 4 to 6 biopsy samples for a lab analysis.   As Ennis said he needs to keep eating gluten until all the tests are done.  The test results are not accurate if he stops eating gluten.

RMJ Mentor

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

kareng Grand Master
59 minutes ago, RMJ said:

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

I think this part is important to remember - first to be diagnosed .  That doesn’t mean someone else didn’t or doesn’t have Celiac.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,580
    • Most Online (within 30 mins)
      7,748

    Megsy61
    Newest Member
    Megsy61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing.   Some people unconsciously reduce the amount of gluten in their diet because the feel unwell.  Three grams of gluten per day is sufficient to produce symptoms.  Only at ten grams or more is the immune system provoked to raise the antibody production high enough so that the antibodies leave the digestive tract and enter the blood stream where they can be measured.   Read the comments below the article...  
    • Wamedh Taj-Aldeen
      Thanks for your response and thoughts. Total IgA is normal. HLA DQ2/DQ8 came as heterozygous and the interpretation of the lab that the risk of coeliac disease is mild to moderate. Thyroid function test is normal. I agree that the best way is to repeat tTG antibodies in 6 months time as the result was not massively high.  
    • knitty kitty
      Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid?   You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo.  TTg IgA can be high in both hyperthyroidism and hypothyroidism.  tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism.   Thanks for visiting!  Keep us posted!
    • knitty kitty
      Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back.  The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction.   Keep us posted on your progress!
    • knitty kitty
      Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already.  Deficiencies in iron and thiamine affect your body's ability to make antibodies.  Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene,  I'm suspecting you do have Celiac disease.   Can you consult a gastroenterologist?  Or ask your doctor to do so.   Gluten Sensitivity can be a precursor of Celiac disease in people with Celiac genes.  Since you've already got symptoms of Celiac disease and evidence malabsorption, an endoscopy with biopsies would be beneficial.   It's can be so frustrating getting a diagnosis because doctors are not familiar with Celiac disease.  Sending you encouragement! Keep us posted on your progress!  
×
×
  • Create New...