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Celiac disease ??

Pattys117
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Pattys117 Newbie
Pattys117
Posted

My 16 year old son has been having stomach aches off and on for awhile but a lot more often in the past 2 months. We went o GI dr. He did bloodwork. All was normal EXCEPT Gliadin ( aga) IGG AB Levels which were quite high- 103.6 -should be under 20-25.

Is this a strong indicator of celiac or just possible a gluten intolerance?? As far as I know, there is no history in my family of celiac. Thank you for any input.

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Ennis-TX Grand Master
Ennis-TX
Posted

I am no doctor but you should probably see about following up with a full celiac panel including the other test, and see about getting a GI consult and perhaps a Endoscope with biopsies to confirm (would also give idea of any other issues in the stomach/intestines). Be sure your doctors are familiar with celiac as many of us struggled getting a diagnosis and wish it was done earlier.  Do keep him eating gluten daily til all testing is done.
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

While celiac is genetic it can skip generations and some do not show the standard symptoms and would only have known if a endoscope and biopsy was done. The disease has hundreds of symptoms and presents differently in people
 

GFinDC Veteran
GFinDC
Posted

Hi,

IMHO that is a strong indication of celiac disease as you called it.  You can ask the doctor to do the full celiac diseased antibodies panel also.  It is good to do all the antibody tests because some people react on only one antibody test and not others.  The other test they can do is an endoscopy where they take 4 to 6 biopsy samples for a lab analysis.   As Ennis said he needs to keep eating gluten until all the tests are done.  The test results are not accurate if he stops eating gluten.

RMJ Mentor
RMJ
Posted

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

kareng Grand Master
kareng
Posted
59 minutes ago, RMJ said:

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

I think this part is important to remember - first to be diagnosed .  That doesn’t mean someone else didn’t or doesn’t have Celiac.

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  • Posts

    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Thanks for the information. I will definitely be doing a lot more investigating in the future!
    • Scott Adams
      symptomatic ?

      By Scott Adams · Posted

      Living or working in environments where gluten exposure is a constant risk can be incredibly challenging, especially when neurological symptoms are involved. For those with celiac disease or severe gluten-related disorders, airborne gluten (like flour dust in kitchens or shared workspaces) can trigger indirect exposure through inhalation or cross-contact, though true celiac reactions typically require ingestion. However, non-celiac gluten sensitivity (NCGS) or wheat allergy can sometimes cause airborne-triggered respiratory or neurological symptoms (e.g., headaches, brain fog, or even seizure-like episodes in rare cases). Your focal seizure could stem from chronic inflammation, vagus nerve irritation, or neuroglial activation if accidental ingestion occurred—but it’s also worth exploring PTSD-related responses if anxiety around exposure is severe. Many with celiac report delayed neurological symptoms (hours to days later), making it hard to pinpoint triggers. Since your family isn’t gluten-free, shared kitchens may pose risks (e.g., crumbs, toaster use, or cookware residue). Suggestions: Workplace Safety: If airborne flour was a factor, request accommodations (e.g., ventilation, PPE) under disability protections—though proving causality is tough. Medical Follow-Up: Push for neurological testing (EEG, MRI) to rule out other causes, and consider a gluten-free household trial to see if symptoms improve. It’s unfair you were let go without clearer answers. Keep documenting symptoms and exposures.
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      Refractory celiac disease

      By Scott Adams · Posted

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      Diagnosis confusion

      By Scott Adams · Posted

      Your blood test was not negative (TTG-IgA result - 4 where <4 negative), but looks borderline if above 4 is positive or weak positive, but you can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
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