Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac link with Rhabdomylolysis?

amiller

By amiller
in Related Issues & Disorders

 Share

Recommended Posts

amiller Newbie
amiller
Posted

Hello community, 

I was wondering if anyone else has had issues with rhabdomyolysis or knew of the condition's relationship with celiac disease. 

In 2018 and again in 2019 I succumbed to exercise induced rhabdomyolysis, and each time was hospitalized for 4 days per treatment. My doctors have been confused because in each case the amount of exercise seemed to be not strenuous enough to cause the condition. In 2018 I did 3 sets of bench press and 3 sets of chest flies. In 2019 I did 4 sets of push-ups for 30 seconds each. Typically these types of things don't lead active and otherwise fit 32 year old men to the hospital. So, my doctors are exploring the connection between celiac disease and rhabdomyolysis. They have found some literature documenting the connection, but not tons. 

Has anyone else had similar issues? Or insight into the connection?

Thank you very much. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

I have not heard that there is any connection between the two.

Are you on a statin by any chance?

amiller Newbie
amiller
Posted
  • Author
14 hours ago, trents said:

I have not heard that there is any connection between the two.

Are you on a statin by any chance?

Nope I don't have any other medications or medical conditions. 

trents Grand Master
trents
Posted

Please keep us posted if you find out more. This is very weird. The two onsets of rhabdo both followed resistance type exercises. Do you know if say, jogging or swimming would do the same?

SuzeRam Newbie
SuzeRam
Posted

A sample of one. Likely have had celiac 15+ yrs (get too ill to be tested). Get what I’ve assumed to be rhabdomyolysis when I’ve twice tried taking statins, as well as same (super scary!) reaction to succinylcholine anesthesia for surgery. Reactions so severe, made me think I was dying. 

Posterboy Mentor
Posterboy
Posted
On 11/9/2019 at 3:54 PM, amiller said:

Has anyone else had similar issues? Or insight into the connection?

Amiller,

I have not had similar issues...but I might have some insight that might help you....I do nutrition research a lot myself...to treat my Type II diabetes without medicine...so I run across other things while I am searching...this research sounds like it will/could/help/describes what might be happening to you....https://jaoa.org/article.aspx?articleid=2094297

I hope it is helpful but it is not medical advise.

Posterboy,

trents Grand Master
trents
Posted

Good catch, PB and a nice, concise post. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


amiller Newbie
amiller
Posted
  • Author

Thank you all for the insight. Posterboy that article is very interesting, it's the first thing that has mentioned folks having continued pain like I do. I'm waiting to get approval for the genetic testing but it looks like we could head in that direction. Again, lots of appreciation for this community. 

On 11/10/2019 at 8:35 AM, trents said:

Please keep us posted if you find out more. This is very weird. The two onsets of rhabdo both followed resistance type exercises. Do you know if say, jogging or swimming would do the same?

For me jogging and swimming have not brought on Rhabdo, but have exacerbated my muscle pain in the months after Rhabdo. 

Posterboy Mentor
Posterboy
Posted

Amiller,

There is another condition you could/should research that also can trigger Rhabdo...it goes by the acronym  MADD... it mainly presents with muscle problems as you describe ...but can present with other symptom's as well and since it rare it is not on doctor's radar's often ...here is an article on it...good luck on your continued journey and I hope you find out what it is that is triggering your Rhabdo...https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4222585/.....this is not medical advise but I hope it is  helpful.

Posterboy,

  • 4 weeks later...
knitty kitty Grand Master
knitty kitty
Posted
On 11/9/2019 at 3:54 PM, amiller said:

Hello community, 

I was wondering if anyone else has had issues with rhabdomyolysis or knew of the condition's relationship with celiac disease. 

In 2018 and again in 2019 I succumbed to exercise induced rhabdomyolysis, and each time was hospitalized for 4 days per treatment. My doctors have been confused because in each case the amount of exercise seemed to be not strenuous enough to cause the condition. In 2018 I did 3 sets of bench press and 3 sets of chest flies. In 2019 I did 4 sets of push-ups for 30 seconds each. Typically these types of things don't lead active and otherwise fit 32 year old men to the hospital. So, my doctors are exploring the connection between celiac disease and rhabdomyolysis. They have found some literature documenting the connection, but not tons. 

Has anyone else had similar issues? Or insight into the connection?

Thank you very much. 

Hi!  I found this article that may help... Celiacs often have a deficiency in Vitamin D because we don't absorb nutrients well.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3784929/

Hope you feel better!

K

amiller Newbie
amiller
Posted
  • Author

Thanks for all the thoughts community. So far all the leads haven't lead anywhere, but we a doing a complete genetic test that will come back in 3 months and let us know if there are any underlying metabolic conditions. Meanwhile, 2 months out I'm continuing to have low level pain but normalized CK levels, so no continuing rhabdo. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,860
    • Most Online (within 30 mins)
      7,748
    Chastity Lynn
    Newest Member
    Chastity Lynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Refractory Celiac disease - what to do

      By RMJ · Posted

      Antibodies to Deamidated gliadin peptides.  It is another celiac antibody test. The main test is the one you had, TTG,  But a full panel will also include DGP IgA and IgG.  I was positive on all of them!
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @RMJ what is the DPG test? I think my doctor never had me do that 
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      Thank you @Scott Adams and @trents this is very helpful, and I think I have some solid ideas to bring to my doctor (corticosteroids, testing for chron’s, increasingly strict gluten-free diet)  @RMJ thank you this is definitely reassuring as well, I’m feeling frustrated and hopeless because I have gone through a similar progression of increasing strictness, and am now at a level similar to what you describe, but have not seen any changes in my blood results. I am now thinking to cut out processed foods altogether maybe with the help of a dietician? I’m also worried about cross contamination from the tables or microwave at my work (there is often free pizza and such sitting). It just feels so restrictive to not see or feel any results 
    • knitty kitty
      High IGA antigliadin, everything else normal, what does this mean?

      By knitty kitty · Posted

      Welcome to the Tribe!   Take the Celiac diagnosis and run with it! P.S.  Yes, adopting a gluten free diet is a big mental adjustment.  Many go through the five stages of grief.  Many are relieved to have a definitive diagnosis instead of being a walking medical mystery.    The forum here can help with lots of articles and years of experience to get you started on your Celiac journey.  Best wishes!
    • SMK7
      High IGA antigliadin, everything else normal, what does this mean?

      By SMK7 · Posted

      This was the advice from the GI physician:  "We discussed that your work-up is equivocal for celiac disease due to discordant serologies and biopsy results. As we discussed the gliadin DGP Ab IgA has a lower sensitivity (87%) and specificity (80-95%) for celiac disease compared to tissue transglutaminase Ag IgA (sensitivity of 95%, specificity of >95%, which you tested negative for). Your duodenal biopsies were normal; though in mild cases of celiac disease, affected areas can be patchy. While about 90% of individuals with celiac disease carry the HLA-DQ2 allele, many people in the general population also carry this allele without developing celiac disease.  In the context of some of your symptoms of GI upset, it's possible that you may have either irritable bowel syndrome, gluten intolerance, or a very mild case of celiac disease. As we discussed, sometimes we can attempt a high gluten diet for 6-12 weeks with a repeat EGD and biopsies. Or, you can treat this as if you had celiac disease by being gluten free and see if it helps with some of your other GI symptoms. We decided to take the second approach. In patients with celiac disease, we do monitor vitamin levels every year. We would also get a DXA scan to screen for osteoporosis. I have ordered these studies for this year; subsequent checks can be done via your primary care doctor's office."
×
×
  • Create New...