Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folate deficient anemia

Ron-92
 Share

Recommended Posts

Ron-92 Newbie
Ron-92
Posted

Hi All, 

I have been diagnosed with folate deficient anemia and subsequently abnormal liver function. 

I had the tests done prior to moving country and this included coeliac testing (unsure what was tested for) this came back as negative. However testing has shown that I had folate deficient anemia and abnormal liver function. My symptoms include having dirrehea most days for approximately 6 years. I have also had the weird spots popping up on my body for the past 3 or so years (this could be DH but as I have also had severe eczema for the last 8/10 years is hard to clearly see these spots and the doctors have always said eczema). I cannot rule out that these spots have been caused by my liver function being abnormal. 

 

One of the issues is that I haven’t spoke to my doctor since testing was carried out as I have moved country. I have only spoke with the nurse so I don’t have any of the results other than what I have stated above. 

These tests were been carried out approximately 1 month ago and since that I have went on a strict gluten free diet and the dirrehea has improved greatly. 

Therefore I still believe gluten is the issue. I will be visiting the doctor again in mid December have further testing to see if my folate and liver function has improved. 

Does this sound like it may be coeliac to anyone? Has anyone had similar issues?

Thanks in advance! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ch88 Collaborator
ch88
Posted
3 hours ago, Ron-92 said:

These tests were been carried out approximately 1 month ago and since that I have went on a strict gluten free diet and the dirrehea has improved greatly. 

Therefore I still believe gluten is the issue. I will be visiting the doctor again in mid December have further testing to see if my folate and liver function has improved. 

Were you eating gluten in the weeks leading up to the test? Also there are different Celiac blood tests. Getting the full celiac blood panel test done is best. There is a search feature on this website where you can look up more information on that or you can ask about that on this site. Also it is best to get a biopsy to make sure.

Some people have Celiac disease and still test negative with the blood tests.

I don't know if you are Celiac, have Non-Celiac gluten sensitivity or something else. I would make sure that the doctor preformed the test correctly. It is common for doctors to not preform the test incorrectly or to give the wrong test.

If you continue to have symptoms you can also try an elimination diet like the AIP or Dr. Frasnos diet. He is a expert in Celiac Disease. Some people find these diets very helpful. The AIP diet has been shown to be effective for IBS.

Celiac disease can effect liver function or you might have another type of liver problem that is unrelated to Celiac disease. I am not a doctor so none of is medical advice. Unless you are getting tested though I would avoid eating all gluten. Non-celiac gluten sensitivity for some people at least is auto-immune related.

If you decide to go gluten free here is some information about cross contamination.

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,605
    • Most Online (within 30 mins)
      7,748
    Keri-lee
    Newest Member
    Keri-lee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...