Help

[c194]

Hi, wondering if anyone can help me.

 

basically I have been tested around 2/3 times for celiac/colitis/Crohns/auto immune diseases. Each time results have came back clear meaning no diagnosis. I am 25 now but have had for years recurrent mouth ulcers although the past 2 years they have been less frequent and only seem to occur when I am run down I have extreme tiredness at the moment to the point I can’t explain it, I have also had quite a few low zinc levels and numerous other symptoms and I just know something isn’t right also inside elbow rashes lately. My mum/grandmother both have ibd. I am just wondering what do I do? I have had blood tests/stool samples but no other tests such as cameras etc. Is there any other tests people recommend. I know I sound very dramatic but this is seriously affecting me in work etc. Not only tiredness but my stomach bloating mood everything. 

[Ennis-TX]

The blood test are used for initial screening while the endoscope with biopsy is the gold standard for diagnosis, there are several blood test they can do, do you know what test where done and can you post results?
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/
You mention a rash, any chance this is DH, I do not have it myself but if I recall those with it often test lower on the blood test and can have more spotty damage to the intestines as the antibodies tend to be more in the skin. Testing insoles a biopsy next to a active lesion.
https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/

[cyclinglady]

I agree with Ennis.  Did you get ALL the celiac blood tests?  If my doctor had just ordered the screening TTG IgA, my diagnosis would have been missed.   I test positive to only the DGP IgA, even on repeated tests.