Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How I Got Thing Under Control Again.


Nancym

Recommended Posts

Nancym Enthusiast

I posted awhile back that I just couldn't get my diarrhea to stop, even though I was gluten free, then dairy free. Well, I went on the SCD diet and everything seems to be all quiet in the southern half of me, for the last 4 days.

I have a feeling there was enough damage there that hadn't healed that everything was causing me to have diarrhea. I intend to stay on it for a long time, gradually add in new stuff.

If you're interested in giving it a try the main web site is www.breakingtheviciouscycle.info but www.scdiet.org and www.pecanbread.com are great sites too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Glad to hear your southern half is doing better! :)

I asked my doctor about the SCD...He kind of smiled at me and said "We're not doing that right now". He said he knows why it works but will explain it later (it was the end of my appt.). Now I'm curious....I wanna know why it works....and if it works why the heck arent I on it. <_<

Nancym Enthusiast

Interesting! Wonder what the deal is too!

According to the author it works because you starve out all the bad bacteria and feed the good ones. In a nutshell, although she shows what happens when bad bacteria get complex sugars and digest them, basically hurting the intestines, causing extra mucus and villi damage.

So her idea is that eating only monosacchrides, which is the only sugar humans can digest (I think), doesn't feed the bad beasties, otherwise the sugars/starches you eat can't be digest by the human part of you and go down to get fermented and worked on by the bacteria in your gut.

One thing is I had been messing around with baking low-calorie/low-carb things and I was using a lot of stuff that is basically carbs that can't be digested. It might be how I got a lot worse in the last year.

Rachel--24 Collaborator

Hmmm...I'll definately have to ask about it at my next appt.

I know my doctor thinks I have some kind of parasite or bacteria infection going on but waiting for test results. During the summer I was only eating meats and veggies....no sugar...no carbs and I was feeling pretty good. Once I went back to the carbs some of my old symptoms came back but it was a gradual change. Now that I knew I was gonna be tested for the parasites I did a little research and found out a parasite infection would worsen on a high carb diet.

Sooo...what did I do? I decided to eat ONLY carbs. :rolleyes:

Yeah....brilliant idea huh.

Anyways, OMG...I have worsened dramatically. I got depression and PMS again, nightsweats, worse chemical and food sensitivities, teeth clenching at night, itchiness all over....to name a few. All this in a couple weeks time. Maybe my doctor was right. I dunno.

If parasites or some kind of bacteria infection are there I wanted them to show up in the test....so thats why I gorged on the carbs.

The tests are done and I'm eating more sensible now and after 2 days my symptoms are clearing...except the food/chemical sensitivities which never goes away completely.

Maybe SCD works cuz of what you wrote but wouldn't the problem return once you go off the diet? Thats not a diet I'd want to stay on for years....I know that much.

Nancym Enthusiast

Mind you, I've only skimmed the book and read selected stuff but I believe that for most people she recommends staying on the diet for about a year. After that, she advises not going back and eating a diet of a lot of grains and to limit complex sugars and starches. Its very similar to the sort of diet Dr. Fine and Dr. Braly (Dangerous Grains) recommend too. Some people, like folks with bad autoimmune diseases, or autism she recommends a life-long commitment. She probably also wants one to keep up the yogurt and probiotics too.

You know, from the other message forum, we're not alone. So many people say their IBS clears up on a low carb diet. I know mine did... until I started on the low-carb bread (which is ultra-high in gluten!).

I think I've gotten to a point in my life where I'm very amenable to dietary changes to keep my health intact. It just seems like I've been on a decline for awhile now and I'm ready to stop looking at food as entertainment and more like a vitamin pill. :P

Guest gfinnebraska

Congrats Nancy!!! I too love the SCD ~ I started last March, but have gone "off" a couple of times due to holidays, etc. I feel SO much better when I stay on the SCD. I am so happy for you!! I know how it feels to finally find an answer to feeling better. :)

jenvan Collaborator

Glad you're feeling better--Go SCD!

Rachel, curious to see what your doctor meant. Do tell when you find out. Parasites--I have to say I am farily skeptical of the idea usually...I think b/c it was proposed to me several times as the source of my issues pre-diagnosis. I even did an herbal parasite cleanse for several months just to be open minded :) No changes, no help in my case. Sorry you've taken a bad turn..How I wish we had the ability to just look inside ourselves and figure it all out...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
I was only eating meats and veggies....no sugar...no carbs and I was feeling pretty good. Once I went back to the carbs some of my old symptoms came back but it was a gradual change. ...I have worsened dramatically. I got depression and PMS again, nightsweats, worse chemical and food sensitivities, teeth clenching at night, itchiness all over....to name a few. All this in a couple weeks time.

This is what is happening to me--I tried cutting out all grains and sugar for 2 weeks and felt better in many ways. I have been adding them back gradually, but even that may be too much because the eczema is back, as well as indigestion and the things you mentioned above. Teeth clenching--me too, and it causes neck and head pain in the AM. :angry:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

    2. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    3. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    4. - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748

    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...