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My story in short. Does it sound like celiac?

Trevize
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Trevize Newbie
Trevize
Posted

Dear Members, 

Just want to share my story and ask some opinion. 

The whole thing started about 3 years ago. First it was a wierd backpain. It was different what I ever had before. More like a muscle spasm and pin and needles feeling. Went to see my local doctor, but she said it's probably just muscle strain. 

About 6 months ago started the constipation. The back pain got even worse. Went to see the doctor again. She sent me for an xray and blood test. Both came back normal, nothing out of the ordinary, so I been considered healthy. 

Same time experienced some weird skin rush. But it was more like an insect bite, random places on my body arms, legs, waist head, etc. Also started some pain in one knee. 

About 3 months ago the constipation got worse. Went to see the doctor again, but no luck no new idea. Got some prescription laxative. 

Had a feeling this just got worse week by week. No blood in the stool, even bought this home kit to check, but the constipation just got worse. Also started wierd abdominal pain and crumpling in my stomach. 

About 3 weeks ago had the idea this might be celiac. Stopped all gluten and diary. Few things happened after that. 

My back pain is gone after a week. So the unexplained skin rush,and the knee is much better. 

But not the constipation. If anything this just got worse. I'm literally living on laxatives now. 

Doctor finally referred me to a specialist clinic, where they will do some kind of black test. No idea what is that. First check will be next week. 

Anyway, would be good to have some feedback. I am extremely worried about this constipation, no matter what I do just got worse week by week. 

Thanks 

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Wheatwacked Veteran
Wheatwacked
Posted

They are looking for gastrointestinal bleeding. If you are taking supplements with iron it could be that. Salad is your friend. If you Google it there are 200 symptoms, aside from Celiac Disease that are caused by a gluten diet. I counted 18 in myself. Since Celiac Disease is a disease of malabsorption once you start noticing symptoms it is only the beginning. The world government has done such a great job of convincing us that wheat is the world's solution to hunger ( Nobel Peace Prize in 1970 to Norman Borlaug), doctors look for any other treatable billable disease. You may have to ask specifically to be screened for it. You may have to be insistent. Your trial GFD(gluten free diet) has already given improvement so there's a red flag for you. Like (wrongly) saying for 30 years that fat is bad, our doctors have been mislead. I was a mouthbreather, congested sinuses of unknown etiology my since childhood. "Not allergies, we don't know why, just a part of life", they said. Then suddenly at 63 years old when I went GFD, my sleep apnea went away and my sinuses have cleared. I do well on Fuhrman's Six week plan. KISS, keep it simple. My son was biopsy diagnosed as an infant. My prostate doctor (high PSA) cavalierly said to my statement that I am GFD; "people have different diet preferences". I was diagnosed in 1971 with Benign Prostate Hypertrophy. It's an old man disease that I had at 21 years old. "we don't know why". By 2013 was I was on a daily prostate supplement (which did work well) but after going GFD in 2014 my enlarged prostate shrank. No more prostate issues now, though he still wanted a biopsy. I declined. My father and older brother both died after intestinal surgery the stitches would not hold and they ended up with sepsis (''we don't know why") and Alan died with a Hawaiian King Roll in hand.

Ennis-TX Grand Master
Ennis-TX
Posted

I had the constipation issues and found it was linked to Magnesium Deficiency (one of the common ones in Celiac among, Iron, B-vitamins, Vitamin D, etc) I started having to dose to tolerance with Magnesium Citrate btw best to use a good kitchen scale (start at 2 grams up the dose daily 2 grams until you get loose stools then back down 2 grams) as you heal you might have to back it down more.

A big thing here, to get tested for celiac disease you HAVE to be eating gluten daily at least 1-2 slices of bread for about 12 weeks for the blood test or 2 weeks for the endoscope This is refereed to as a gluten challenge. Be sure they do the full celiac blood panel.
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

BuddhaBar Collaborator
BuddhaBar
Posted
15 hours ago, Trevize said:

Dear Members, 

Just want to share my story and ask some opinion. 

The whole thing started about 3 years ago. First it was a wierd backpain. It was different what I ever had before. More like a muscle spasm and pin and needles feeling. Went to see my local doctor, but she said it's probably just muscle strain. 

About 6 months ago started the constipation. The back pain got even worse. Went to see the doctor again. She sent me for an xray and blood test. Both came back normal, nothing out of the ordinary, so I been considered healthy. 

Same time experienced some weird skin rush. But it was more like an insect bite, random places on my body arms, legs, waist head, etc. Also started some pain in one knee. 

About 3 months ago the constipation got worse. Went to see the doctor again, but no luck no new idea. Got some prescription laxative. 

Had a feeling this just got worse week by week. No blood in the stool, even bought this home kit to check, but the constipation just got worse. Also started wierd abdominal pain and crumpling in my stomach. 

About 3 weeks ago had the idea this might be celiac. Stopped all gluten and diary. Few things happened after that. 

My back pain is gone after a week. So the unexplained skin rush,and the knee is much better. 

But not the constipation. If anything this just got worse. I'm literally living on laxatives now. 

Doctor finally referred me to a specialist clinic, where they will do some kind of black test. No idea what is that. First check will be next week. 

Anyway, would be good to have some feedback. I am extremely worried about this constipation, no matter what I do just got worse week by week. 

Thanks 

It does sound like celiac. Those pins and needles I'm familiar with too. That skin rash is probably urticaria. It looks very similar to insect bites. I've had those too many years ago.
About the constipation. Yes, it can get worse on a gluten free diet because it's lacking in fibre. Try a gluten free fiber supplement like psyllium seeds. 
But you shouldn't start your gluten free diet before you've done the blood test and biopsy of the small intenstine. 
Take a celiac self test. Search the websites of some pharmacies and see if they sell it. 

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