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How Long For Relief


limey

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limey Newbie

Hi, I'lm pretty sure I'm celiac. Symptoms are post nasal drip,fatigue,anxiety,depression etc etc. Allergies to dairy also.

I've switched to gluten-free diet. How long before i can expect to see results?

thanks


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RiceGuy Collaborator

Hello, and welcome to the board!

According to what many here are saying, relief can come in days, weeks, months, or longer. It depends on the severity of the damage, and many other factors which vary greatly from person to person.

Some report near full recovery in a short time. For me it has been about a year or more now, and I'm just begining to see improvement. That is to say, my symptoms are definitely less severe, but different now. As many others have found, I am experiencing other sensitivities which I had not before. Apparently it is quite common to become lactose intolerant, casein intolerant, and also to develope a sensitivity to soy, eggs, nuts, corn, and more.

Hope you feel better soon. I'm sure you will find this site and the members here to be a wealth of valuable information. I certainly have.

Lisa Mentor

To be totally on your road to recovery, you must check your shampoos, lotions, lipsticks/shaving cream, soaps. Remember, gluten is in everything you come across during the course of the day. Anything that has potential to come into contact with your mouth.

If you need so initial product suggestion, please post back, and we will offer some.

What are your other symptions?

Lisa B.

jerseyangel Proficient

How long have you been on the gluten-free diet? Have you noticed any positive changes so far? I didn't start to feel better until the 4th. month gluten-free. I had pretty severe gastro. problems, though. How long is an individual thing--a lot depends on how long you've been sick, your symptoms, etc. Are you sure that you're 100% gluten-free? Maybe if you told us a little more about your situation, we could offer more specific suggestions :)

limey Newbie

:( Here's my full symptoms, of which I've had for over 15 years.

Allergies,

Post nasal drip,

Stiff joints,

Fatigue,

Low energy,

Anxiety,

Depression,

white spots on figure nails

phlegm in back of throat.

Problems gaining weight. I'm 6'1 and weight 175 lbs. I eat 3 square meals a day plus protein shakes.

My Dad and brother back in England have nasal drip also

Symptoms are worse after drinking beer!!

I've stopped beer,bread,wheat yeast etc. Diet now consists of brown rice, meat,veg, potato, water, coffea,fruit . I switched toothpaste to colgate total. I've stopped taking my protein shake EAS whey as I feel dairy is also a big prob and not sure if gluten is in it. I've tried allergy meds, visited ENT, taken anti depessants -no treatments help me :angry: .

jerseyangel Proficient

M-m-m--How long have you been gluten-free? Like I said, the time it takes to feel a difference varies. I would think a few weeks would at least give an indication that it was working. You have seen an ENT--have you been seen by a Gastroenterologist? You didn't mention any gastro. symptoms--are you noticing any difference in that area?

limey Newbie

Don't really have any gastro symptoms, except real bad flatulence if I eat oats :) The ENT said nothing was wrong, tried allergy specialist but they could not provide relief. I'm hoping its the gluten so then I have a solution.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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