Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac and long-distance running


97133620

Recommended Posts

97133620 Rookie

Hello, does anyone out there have any experience with having celiac disease and long distance running?  I was diagnosed less than 3 months ago and I have run 14 marathons.  Eating a lot of pasta etc was part of my life, so it's been a bit of a change switching the glute-free varieties.

 

If you are an endurance athlete and have been diagnosed with celiac disease, how did you cope with the transition?  Did it affect your athletic performance?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jdalzell Newbie
46 minutes ago, 97133620 said:

Hello, does anyone out there have any experience with having celiac disease and long distance running?  I was diagnosed less than 3 months ago and I have run 14 marathons.  Eating a lot of pasta etc was part of my life, so it's been a bit of a change switching the glute-free varieties.

 

If you are an endurance athlete and have been diagnosed with celiac disease, how did you cope with the transition?  Did it affect your athletic performance?

Thanks

You’ll be better than ever gluten-free.  Just make sure you take B vitamins since gluten-free breads are not fortified.

Scott Adams Grand Master

Also be sure to get enough fiber.

cyclinglady Grand Master

Three months after my diagnosis, I fractured two vertebrae doing NOTHING!  Found out that I had osteoporosis.  So, I spent the next six months doing just gentle exercise and stayed off my bike for a year.  

I never did a full marathon, but did many mini-triathalons and century rides.  I did a 1/2 marathon despite being anemic just before my diagnosis.  But after seeing all those runners at the first aid tent with ice on their knees (it was like the scene from the movie “Gone with the Wind”), I decided a full marathon was not for me (even though I trained well and did not need any ice).  I prefer cycling and swimming, but that is just me.  

Anyhow, I am back on my bike again.  Just rode this morning to the beach.  My trail runs are usually just 3.5 miles.  

Take it easy,  give yourself time to heal.  You will be back to normal.  All that carb loading?  Not necessary.   I follow a low carb diet and even exercise while fasting.  

NNowak Collaborator

Yep!!  More energy and endurance than I knew what to do with!!  I did not normally eat potatoes, pasta or bread unless I had a race or needed to put weight on. You will be be fine. I had an autoimmune flare so I’ve been away from training for a few years, but anxious to return. Really, you will be amazed at the amount of energy realized once you’re on your way to recovery. 

97133620 Rookie

Thanks everyone!  Can't wait until I heal, the 3 months since being diagnosed has felt like an eternity!

Fenrir Community Regular

As far as nutrition goes, instead of pasta , rice will probably be your go to carb. You will want to be weary of any packaged items you come across at runs. I know they generally give out bags with goodies in them that sometimes are edible, so avoid those pre race unless you're sure they're gluten-free or it could make for an interesting run. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748

    Hughesy
    Newest Member
    Hughesy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.