Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


4tomorrow

Recommended Posts

4tomorrow Apprentice

I was wondering if it is worth the $350.00.

I have had diarrhea for 6 months, gas and pain about two inches above my navel. My blood tests were negative, and my biopsy was inconclusive.

I am currently on Librax which is the only thing that has given me any relief. I am bipolar though and I really don't want to stay on it any longer than necessary.

I don't know if I want to go gluten-free until I find out for sure because I know I will go very strict with it and stress myself out.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Whether it is worth it is probably a personal decision, but I do feel it was worth it for me. I had been on a low carb diet for a few years, so any damage would have probably been hit or miss in an endoscopy. I'm not sure if a blood test would have worked because while I was basically eating low-carb I did eat some (not a lot though) low carb products which contained wheat, rye and barley.

Someone correct me if I am wrong, but I don't believe the standard blood tests and endoscopy will tell you if you have an intolerance or sensitivity which can be just as problematic as full-on Celiac and the treatment for it is the same--gluten-free.

The Enterolab results definitely showed me I have a sensitivity to gluten. I also had the genetic testing and testing for Casein, yeast and egg intolerance. Turns out I also have sensitity to Casein but not egg or yeast, which was VERY helpful for me and the genetic testing told me that I carry one of the main genes which is associated with Celiac disease.

[ETA] I also think that having this information has helped to cement in my head that I absolutely DO have to adhere to the gluten-free lifestyle. You can always try the gluten-free diet for a few months to see if your symptoms clear up.

Guest barbara3675

DLP 252 was right.....the blood test and endoscopy will not tell you if you are gluten intolerant or sensitive. The Enterolab testing will tell you if you are and also if you are casein intolerant and if you carry the gene. I tested negative through blood, but positive for intolerance of gluten and casein/and carry the gene. It was well worth the nearly $400. You should know that with many people the casein sensitivity will go away after several months when the celia have healed and you can go back to eating dairy products. That is the way it was with me and with many others. This could be the best money you can spend as it will put you at rest about your situation and head you in the right direction in regard to your health. Barbara

dlp252 Apprentice

I noticed that you had another thread started and saw an additional question...you asked about how soon you get the results. I believe I had mine in just slightly over 2 weeks from the time I sent it in.

CMCM Rising Star
I was wondering if it is worth the $350.00.

I have had diarrhea for 6 months, gas and pain about two inches above my navel. My blood tests were negative, and my biopsy was inconclusive.

I am currently on Librax which is the only thing that has given me any relief. I am bipolar though and I really don't want to stay on it any longer than necessary.

I don't know if I want to go gluten-free until I find out for sure because I know I will go very strict with it and stress myself out.

Thanks.

Absolutely worth every penny to me. I looked at all the individual tests, and decided the complete panel for $350 was definitely the cheapest way to find out the most: the genes (I had TWO of them!! I knew my mom had celiac, but my late father's contribution of a 2nd gene was a complete surprise!). That bit of knowledge (that I had 2 genes, one for celiac and one for gluten sensitivity) told me that my two children would also have one of my problem genes as well. I learned that I didn't have malabsorption yet (yay!) and I learned (not at all surprising) that I was casein sensitive. This panel answered most of my questions....and later I ordered the egg/yeast/soy panel as well. I don't suspect egg or yeast, but I won't be surprised about soy because I know full well that it always affects me. (I don't have results back yet for this latest test).

All of this if far far cheaper than chasing numerous doctors, doing bloodwork, doing allergy tests etc.

I got the gluten panel info back in about 2 weeks, by the way.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,721
    • Most Online (within 30 mins)
      7,748

    Orchids
    Newest Member
    Orchids
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Yaya
      This is difficult for me to deal with.  B complex is what stands between me and migraines.  Whenever I stop B for just a few days, I get a migraine.  All my adult life I would get a violent migraine for 3 days like clockwork until a doctor told me to try B complex and it worked.  The only time I get a migraine is when I've run out of B.  This has worked for me for over 15 years.  I am soon to be 79.   My cardiologist has me stop all vitamins for about 3 days and I always have a migraine when I go in for the bloodwork.   D level is nearly at optimal.  I don't take A, I get enough from food.   What a dilemma!
    • Scott Adams
      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Although labeling products in the USA as "gluten-free" that contain such wheat starch is relatively new, it has been offered in Europe for decades. You can read more about studies on it here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • DebJ14
      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
    • trents
      Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation. You might also want to research MCAS (Mast Cell Activation Syndrome) as it is often goes hand in glove with histamine intolerance and is actually the root cause. Or, at least that is my understanding. By the way, you can purchase DAO capsules but there is not clear evidence they work.
×
×
  • Create New...