Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


4tomorrow

Recommended Posts

4tomorrow Apprentice

I was wondering if it is worth the $350.00.

I have had diarrhea for 6 months, gas and pain about two inches above my navel. My blood tests were negative, and my biopsy was inconclusive.

I am currently on Librax which is the only thing that has given me any relief. I am bipolar though and I really don't want to stay on it any longer than necessary.

I don't know if I want to go gluten-free until I find out for sure because I know I will go very strict with it and stress myself out.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Whether it is worth it is probably a personal decision, but I do feel it was worth it for me. I had been on a low carb diet for a few years, so any damage would have probably been hit or miss in an endoscopy. I'm not sure if a blood test would have worked because while I was basically eating low-carb I did eat some (not a lot though) low carb products which contained wheat, rye and barley.

Someone correct me if I am wrong, but I don't believe the standard blood tests and endoscopy will tell you if you have an intolerance or sensitivity which can be just as problematic as full-on Celiac and the treatment for it is the same--gluten-free.

The Enterolab results definitely showed me I have a sensitivity to gluten. I also had the genetic testing and testing for Casein, yeast and egg intolerance. Turns out I also have sensitity to Casein but not egg or yeast, which was VERY helpful for me and the genetic testing told me that I carry one of the main genes which is associated with Celiac disease.

[ETA] I also think that having this information has helped to cement in my head that I absolutely DO have to adhere to the gluten-free lifestyle. You can always try the gluten-free diet for a few months to see if your symptoms clear up.

Guest barbara3675

DLP 252 was right.....the blood test and endoscopy will not tell you if you are gluten intolerant or sensitive. The Enterolab testing will tell you if you are and also if you are casein intolerant and if you carry the gene. I tested negative through blood, but positive for intolerance of gluten and casein/and carry the gene. It was well worth the nearly $400. You should know that with many people the casein sensitivity will go away after several months when the celia have healed and you can go back to eating dairy products. That is the way it was with me and with many others. This could be the best money you can spend as it will put you at rest about your situation and head you in the right direction in regard to your health. Barbara

dlp252 Apprentice

I noticed that you had another thread started and saw an additional question...you asked about how soon you get the results. I believe I had mine in just slightly over 2 weeks from the time I sent it in.

CMCM Rising Star
I was wondering if it is worth the $350.00.

I have had diarrhea for 6 months, gas and pain about two inches above my navel. My blood tests were negative, and my biopsy was inconclusive.

I am currently on Librax which is the only thing that has given me any relief. I am bipolar though and I really don't want to stay on it any longer than necessary.

I don't know if I want to go gluten-free until I find out for sure because I know I will go very strict with it and stress myself out.

Thanks.

Absolutely worth every penny to me. I looked at all the individual tests, and decided the complete panel for $350 was definitely the cheapest way to find out the most: the genes (I had TWO of them!! I knew my mom had celiac, but my late father's contribution of a 2nd gene was a complete surprise!). That bit of knowledge (that I had 2 genes, one for celiac and one for gluten sensitivity) told me that my two children would also have one of my problem genes as well. I learned that I didn't have malabsorption yet (yay!) and I learned (not at all surprising) that I was casein sensitive. This panel answered most of my questions....and later I ordered the egg/yeast/soy panel as well. I don't suspect egg or yeast, but I won't be surprised about soy because I know full well that it always affects me. (I don't have results back yet for this latest test).

All of this if far far cheaper than chasing numerous doctors, doing bloodwork, doing allergy tests etc.

I got the gluten panel info back in about 2 weeks, by the way.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.