Wondering If Any Of You Had The Same Symptoms Before Being Diagnosed With Celiac

[lemonade]

hello,

For years I have been suffering with stomach problems, such as nausea, gas, bloating, sharp pains in stomach, heartburn, indigestion etc... in the past 3 months these symptoms have extrmely intensified. I had to go to the hospital a few times for the discomfort. I went to the doctor for this problem in the begininng when the symptoms increase. They gave me losec for my heartburn and i had several blood tests done for different diffeciencies and diseases (except for celiac) all which came back negative. I had an upper/lower GI test done and an ultrasound done, both came back negative and normal. I am sooo very frusterated with the way I fee. I feel soooo sick. I have no energy, iam lathargic, I have nausea, bloating, gas, chills, a burning sensation in my throat and chest, indigestion, upset stomach, stomach pains. I have suffered from depression in the past, and I am suffering from it now. I can not concentrate on anything. After eating i feel sick, and have any of the symptoms i described above. I have lost about 10 pounds in three months due to this. Basically I feel sick all the time. I am getting my blood tested for celiac disease tommorow. Can any of you tell me if you have had any of these symptoms, and if you think i may have celiac disease?

Thanks,

Lemonade

[Rachel--24]

Those can all be symptoms of Celiac Disease. If the test results come back negative I would still highly recommend trying the diet anyway. Not everyone on here had positive blood tests but had very positive response to the diet. The tests arent always 100% accurrate. Good luck.

[Guest nini]

It sounds very much like classic Celiac, what tests are they running on you? You need to make sure that they do the most specific Celiac panel of tests... keeping in mind that many people have negative blood tests and a positive biopsy, and even some have negative blood test and negative biopsy and still respond positively to the gluten free diet.

here are the specific tests you need to have to get a better chance of an accurate diagnosis.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

[lemonade]

It sounds very much like classic Celiac, what tests are they running on you? You need to make sure that they do the most specific Celiac panel of tests... keeping in mind that many people have negative blood tests and a positive biopsy, and even some have negative blood test and negative biopsy and still respond positively to the gluten free diet.

here are the specific tests you need to have to get a better chance of an accurate diagnosis.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Im pretty sure they are testing for all the components above. I just had a blood test for celiac disease this morning, the results are to be in in a couple days. I am going to try gluten free today. However, I am feeling really overwelmed with what i can and cant eat, hidden glutens etc...I am going to start a new thread becasue i have many many questions on this. If anyone can answer them, i would be greatful.

Lemonade

Lemonade.

[lemonade]

It sounds very much like classic Celiac, what tests are they running on you? You need to make sure that they do the most specific Celiac panel of tests... keeping in mind that many people have negative blood tests and a positive biopsy, and even some have negative blood test and negative biopsy and still respond positively to the gluten free diet.

here are the specific tests you need to have to get a better chance of an accurate diagnosis.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Just wondering,

if i start the gluten free diet right now will it effect the biopsy results?

lemonade

[christa]

Just wondering,

if i start the gluten free diet right now will it effect the biopsy results?

lemonade

When is your biopsy? You do want to stay on a diet containing gluten before you get a biopsy. If you eat gluten free then your biopsy could come back negative even if you have celiacs. It has to do with the villi in your intestines being flattened when eating gluten and I believe this is what they look for in the biopsy. If you stop eating gluten the intestines will begin to heal and it could affect the test results.

I got diagnosed by entrolab. I had a negative blood test and my biopsy came back negative. I was however eating very little gluten at the time of my biopsy because I had already figure out myself that when I ate bread, crackers, cereal etc. I felt the worst, although I felt sick all the time. The doctor said I could do a gluten challenge where you go back to consuming gluten and then they will rebiopsy. HOwever, there is no way I would do that because I have been gluten free for about 2 months and feeling so much better. Definetly not 100% but SOOO much better. Your symptoms sound very much like mine so I'd say hold off on the gluten free diet until your biopsy and then try it. Just like others said there are people here including me that didn't get a positive result but are definelty improving on the diet. So regardless of your results it is worth a try. There are lists of Gluten free foods in the grocery stores that you can get so when you start on the diet as it is sooo confusing you know of atleast some things that are safe and then you can slowly learn as you go. Kraft has a website where they list all of there gluten free foods. I found when I first staarted on the gluten free diet I would still get sick even when I ate gluten free so give it some time. I staarted out eating plain chicken and steamed vegetables and things I knew I could handle and then I am slowly reintroducing things iin my diet and it keeps expanding so that is great! Hang in there we know how you feel.