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Opps Another Attrack.

stephen11

By stephen11
in Coping with Celiac Disease

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stephen11 Newbie
stephen11
Posted

I am so overwhelmed and anxious as I am having diarrhea attracks every day. I just can't stand it anymore. I am on a strick Gluten free diet (which I hate) and I am still having my problem. What can I do. I can't do anything in public and I feel that I am trapped in a unknown world as I am always afraid that I might have an attrack any time of the day and anywhere I go. I can hardly go to work, without having to worry if I will have a attrack or not. Then if I have a attrack I have to go home sick because, of my problem which can be very embrassing. I just can't take it anymore.

My family is very supportive and really are giving me great help with trying to stay on the celiac diet but I hate the food and I can't stand for what I can and can't eat. Normal bread (which I know is a total no-no) I love and before my attrack was something I had in almost every meal. I keep asking my family if we can go to a specailist for my problem which no one has officailly dianoised but they keep telling me "NO" because they believe that the Gluten Free diet is the way to go. Even my regular dr. thinks that the gluten diet is my answer, but I am still having problems a couple times a day even with the diet I am on which I really hate.

Please anyone, give me some advice and what I can do. I can't take this anymore. I just want to get over the problem and be done with it.

Thank you.

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happygirl Collaborator
happygirl
Posted

I am sorry to hear you are having trouble. Understandably, you are frustrated!

Couple of questions-

Were you diagnosed with Celiac Disease? If so, by bloodwork or biopsy? If not, why does your dr think it is gluten?

How long have you been on the gluten free diet? Are you eating out? What types of food are you eating?

Have you been tested for other intolerances/allergies or other problems?

How old are you?

Hopefully with some more info, members of the board can provide you with some insight.....

stephen11 Newbie
stephen11
Posted
  • Author

Thanks for writing me, my family and doctor thinks that I have Celiac because he saw something that was kind of high in my blood when I first had the first signs of it.

I have been very careful with what I have been eating out at, everytime that I have an attrack I look at what could have caused this last attrack wondering why I had it with what I justy ate. I have been on a Gluten free diet for a month now and I hate the food. So yes, I have been very careful at what I have been eating and my family has been telling me what to eat and not to eat. Oh by the way, this terrible diet has caused me to loose weigh, not too much but some.

For my age, let's say I'm in my late 30's. and no I have not been tested for intolerances/allergies or other problems since they are all convinced that it is Celiac. And nothing else, period. Which I know can't be the case.

I do hope to hear from others about this issue.

happygirl Collaborator
happygirl
Posted

When you say family, are you referring to your parents or to a partner? Are you living with anyone?

Have you looked at potential cross contamination? Do you have separate butters, mayos, etc that haven't been 'contaminated' with a wheat product (i.e., a knife that touched regular bread?)

What types of things are you eating---you mention how much you hate the diet. I konw that this diet limits our options, but there are many alternatives and many normal "safe" products. It takes a long time to learn all the ins and outs of this diet. You still may be getting gluten in your system, you may still be healing and therefore having problems, or there may be another culprit.

Do you know which blood tests were run?

How about trying to make an appointment with a new GI or specialist since you feel you are not improving?

StrongerToday Enthusiast
StrongerToday
Posted

And you may want to consider other food intollerences - soy, dairy, corn, etc. I'd recommend keeping a food log so you can try and find a relation from foods and meds you've had to symptoms. I still sometimes have D and sometimes it's hard to find what triggred it - but maybe it's just something that happened and is part of the healing process. Stress also play a big part for me too.

Hope you're feeling better soon!

stephen11 Newbie
stephen11
Posted
  • Author

I live alone, in apartment in Maryland. I am very good at cleaning my dishes by soap and water as I do not have a dishwasher. I've been on this diet for a month and we have a special store we go to which sells Gluten Free food. Which I think personnally think taste terrible. But my parents say this is the only way to go to get over my problem. I just don't believe that no matter to what anyone sayes it isn't the problem.

Confused !!

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