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Waterford Ny

Kim UPST NY

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Kim UPST NY Apprentice
Kim UPST NY
Posted

Hello I am in waterford NY Ijust found out why I have Anxiety Why I lived with a stomach ache everyday and whay I can't gain wait Yep Celiac Since I was Probably 10 at least and now I'm 34 I am looking for people in my area to meet with I am so new at this 3 weeks and I am trying to get by on my own I had a lousy doctor that tried to feed my Paxil because it was all in my head. Thank god the emergency room Gave me Dr. Gerson he knew right away and helped me . But Trying to find a dietitian is not so easy. :(

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zakismom Newbie
zakismom
Posted

I'm in Albany! I don't belong to a support group though. I believe there is one around though that meets at St Peter's Hospital. The last time I tried to get more info, the email address I had was no longer active. I'll look again and post/message you with what I find. :)

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Try this site- There is a chapter in Queensbury.

Kim UPST NY Apprentice
Kim UPST NY
Posted
  • Author

oh Yes I do know about that group it's at St peters this thursday at 6:45pm Yes That I know about. Did you want to go?

teebs in WV Apprentice
teebs in WV
Posted

Hi Kim. I am not in NY, but I work for a company that has a manufacturing plant in Waterford and know some people there. The more I am on this message board the more I realize what a small world this is!

nothungry Contributor
nothungry
Posted

Hi Kim...I am a member of the St. Peter's Support Group. I unfortunately do not go to meetings very often. Everyone is really great there. They have a lot of information about every aspect of Celiac Disease. They always have yummy foods to try and lots of samples. It's definitely worth the trip! use Doctor Samuels in Albany as my GI and Vanessa Denning at Albany Clinical Nutrition is my nutritionist. I must say that Dr. Denning is totally awesome and I HIGHLY recommend her. She monitors all of my nutrition issues and bone density issues. No other doctor has had the understanding of the broad range of issues associated with celiac disease as she has. Good luck with everything! Let me know if you find any gluten free dining hot spots in the area, so far I haven't had much luck.

popoki321 Rookie
popoki321
Posted

Hi Kim

(and everyone else)

I'm new here, too. I live just outside Saratoga Springs in Greenfield and have just been diagnosed with Celiac Disease. I am also 34. Wow -look how much we have in common already!

I use Dr. Bauer. His office is in Wilton and he works out of Glens Falls Hospital.

I haven't seen a dietician yet, but that is my next step. Besides Celiac, I also have Diverticulitis which is another disease where you have to eliminate certain foods from your diet. I really need someone to tell me what to eat!

Albany is a bit of a hike for me, but the St. Peters group sounds like something I might want to try.

nothungry, I know the health food store in Saratoga Springs called Four Seasons has a restaurant. I cannot say whether they serve gluten free food but I know they sell a decent selection ( well.. maybe an OK selection) of gluten-free products.

I will be checking in the next few days whether they serve gluten-free meals. I'll post when I find out.

zakismom Newbie
zakismom
Posted

I wouldn't mind checking out one of the meetings at St Peters. Do you know when the next one is? I was diagnosed by Dr Puleo (JR) but I wasn't thrilled with my follow up care with him.

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Kim UPST NY Apprentice
Kim UPST NY
Posted
  • Author

wELL the last meeting was last thursday but I missed it I will find the web site and let you know when the new one is , My Dr was Doctor Gerson, Pelebo's Parnter I guess. But I feel kinda lost I don't have a dietiacen or anything and I have to wait until April for a follow up. I am in Waterford Ny where are you? I have a13yr old daughter and 14 yr old Son .

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      how much gluten do I need to eat before blood tests?

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