Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing/ Son Is Going In For Biopsy & Blood Testing


skurtz

Recommended Posts

ianm Apprentice

Skurtz you are way out of line here. This forum is a place where people with celiac can come and share their knowledge and experiences with this disease. You have asked many questions and have been given good and sound advice from people who have had far more experience with celiac than you. If you don't like the answers you are getting then why are you wasting everyone's time by asking questions? Nini is one of the most knowledgeable members of this forum and for you to make a personal attack on her is simply uncalled for.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skurtz Explorer

I may have asked for insight but I suggest you look back at nini remarks it is her who has made the personal attacks. As I stated before I do appreciate the help But I FEEL that She has PERSONALLY ATTACKED ME, with sarcastic remarks. Hey whatever that is how I FELT!!!!!!!!!!!!!!!!!!!!!!!!!!! & your right I probably have received good sound advice & Im sure everyone or just about everyone knows more then me about Celiac. Im just trying to the best for my kids & whatever.

Rachel--24 Collaborator

I don't see anything sarcastic in Nini's posts. Perhaps you misunderstood her intentions? As far as I know she was just quoting information that the learned from a Celiac Specialist who spoke in her recent support group meeting. All we are trying to do here is give people the most information we can so that they can make informed decisions. I believe knowledge is power and when it comes to our health we should learn all we can.

JMO.

skurtz Explorer

maybe I did misunderstand , I do however agree with the 2nd part of your reply.

Guest nini

I just went back through this entire thread and no where on here could I see anything that could even be remotely construed as sarcastic. I was simply trying to help. When I stated my opinion I added specifically on there that it was my opinion. The rest of the info was from a renowned Celiac Specialist. A Dr. with a very busy Gastroenterology practice that speaks to support groups around the country and is a reference source for many of the books on Celiac that are out now. She spoke at our meeting last week and I was simply trying to relay some of the infomation that she shared. In no way was it my opinion, nor was it ever an attack.

You specifically stated that unless I was an expert you were going with the advice you are getting from your sons NURSE. Fine. I was just trying to help you with answering the questions I thought you were asking.

I spent 33 years of my life very ill and am only trying to help prevent others from going that long without a dx. If you do not want to benefit from my experience that is your choice, but you are taking chances with your sons health. Again. I was only trying to help, but I guess you didn't really want my help, since you kept confusing me with Rachel anyway.

skurtz Explorer

I AM SORRY, I took your comments as a direct hit like Im not trying to do what is BEST for my SON.

I do appreciated the info or I wouldnt have been asking. Once again I am sorry

Guest nini

apology accepted. it's easy to misconstrue someone's intentions in an online forum, but I promise you, my intentions were only to help by directly answering the specific questions you asked to the best of my ability.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      16

      My only proof

    2. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    4. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    Suelle
    Newest Member
    Suelle
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.