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RCorbin

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RCorbin Newbie
RCorbin
Posted

I wish I'd read this forum before spending $150 out of pocket for a Food Allergy blood panel (QuesTest). The results were negative for wheat, the scratch test I took 3 years ago was negative for wheat. I'm one of 38 million working Americans without health insurance so I can't afford more doctors visits right now.

Well, I guess that's just a comment I wanted to make, no question. I know I'm not imagining my reaction to wheat/gluten, I can't afford to play doctor-merry-go-round. I'm certainly not willing to go off my gluten-free diet for a while in the hopes of developing measurable symptoms. So that's where I live now; gluten sensitive by life experience rather than lab measurements.

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ianm Apprentice
ianm
Posted

I never even knew there were any tests available for celiac or gluten sensitivity until after I gave the crap up. The change in my health and life in general was so dramatic that there was no question as to what the problem was.

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    • StuartJ
      Gluten Sensitivity

      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
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