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RCorbin

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RCorbin Newbie
RCorbin
Posted

I wish I'd read this forum before spending $150 out of pocket for a Food Allergy blood panel (QuesTest). The results were negative for wheat, the scratch test I took 3 years ago was negative for wheat. I'm one of 38 million working Americans without health insurance so I can't afford more doctors visits right now.

Well, I guess that's just a comment I wanted to make, no question. I know I'm not imagining my reaction to wheat/gluten, I can't afford to play doctor-merry-go-round. I'm certainly not willing to go off my gluten-free diet for a while in the hopes of developing measurable symptoms. So that's where I live now; gluten sensitive by life experience rather than lab measurements.

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ianm Apprentice
ianm
Posted

I never even knew there were any tests available for celiac or gluten sensitivity until after I gave the crap up. The change in my health and life in general was so dramatic that there was no question as to what the problem was.

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      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
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      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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