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Does This Sound Like Cd?


crackrick

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crackrick Newbie

Greetings everyone,

I have been dealing with a myriad of seemingly-unrelated health issues for a long time now, and they've come to culmination just recently. Had it not been for a chiroprator friend who has celiac disease and recognized my symptoms would I even have heard or consider that I may have celiac disease. But, I wanted to share my sufferings and see if they sound familiar, or if those of you with experience have seen a similar pattern.

1988 - Dx with Type-1 Diabetes (no family/genetic connection) placed on "constant-carbohydrate" diet

1990 - Dx with G.I. Reflux

1997 - Dx with Mitral-valve prolapse

- begin having stomach problems (diarrhea, gas, gurgling)

2002 - Dx with Irritable Bowel Syndrome

- Dx with General Anxiety Disorder/Depression

2003 - (Spring) begin having random shooting/sharp pains throughout body

- (Winter) begin having tremors in hands/forearms

2004 - tremors have worsened, now having "spells" ...all as yet undiagnosed.

- (April) have biopsy on swollen lymph node, no malignancy

After reading much of what many of you have shared with the problems such as diarrhea, bloating, gurgling, gas, etc.; plus from the information given to my by my chiropractor, and the data I've found on this site, I think celiac disease would/could explain a more-than-decade-long pattern of illness that could be partially reversed through a gluten-free diet.

I have talked with my family doctor, but he wants me to see a Gastroenterologist, and didn't seem to know about blood tests available that would at least show indicators. Should I wait before going gluten-free, or should I go ahead and make that move? If so, any diabetics out there that could give me suggestions for compensating for the loss of breads, pastas, etc. that typically make up a diabetic's diet?

Thanks for the help.

Patrick


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Guest jhmom

Hi Patrick WELCOME!!!

A Gastro doc would be the best doc to see, preferably someone with celiac disease experience. He may want to do blood work and in order for that to be accurate (as accurate as it can be) you MUST remain on gluten until testing is over.

There are 2 other options if you do not want to take the route above....

1. you can try the gluten-free diet for a couple of weeks or months to see if you show an improvement, if you do then you most likely have celiac disease or gluten sensitivity.

2. you can order a stool panel test from Open Original Shared Link which is more sensitive than blood and you DO NOT have to be eating gluten in order for the results to be accurate.

I hope you feel better soon and get some answers :D

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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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