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Binge Eating - gluten-free Just Over 3 Weeks

DingoGirl

By DingoGirl
in Coping with Celiac Disease

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DingoGirl Enthusiast
DingoGirl
Posted

I have been gluten-free for 3 1/2 weeks after positive biopsy/blood tests and all of it.......I was always thin and never cared about food at all, forcing down 3 meals a day before dx and severely malnourished. I started feeling *fantastic* just five days gluten-free, but this week - trouble. Anywho, I have gained 8 pounds and now find myself RAVENOUS at night, bingeing on things endlessly - - chips, rice pudding, white cheddar popcorn - - what's going on?? :blink: Have any of you wonderful people had this problem? Will it stop??? Stomach hurts :( and is sticking out very far, probably from eating too much but also possible gluten ingestion.....

This board has saved my life, btw! :)

Susan

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jerseyangel Proficient
jerseyangel
Posted

I seem to be hungry a lot of the time, too. Sometimes, it's more than hunger--like a serious NEED for food. I thought it was my body's way of making up for all the nutrients it was lacking, but it's been 8 months--I don't want to be gaining any more weight :D

frenchiemama Collaborator
frenchiemama
Posted

I went through a phase like that too. For a few weeks it seemed like I could never get enough to eat. I was just starving constantly. It eventually settled down.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
I went through a phase like that too. For a few weeks it seemed like I could never get enough to eat. I was just starving constantly. It eventually settled down.

thank you, THAT is good news....I've never really binged before, and am just CRAVING certain kinds of foods! Hopefully this shall pass....

kevsmom Contributor
kevsmom
Posted

I have been gluten free for about 9 months. I am still binging. I had lost 35 lbs. in 3 months before I was diagnosed. I have gained back the 35 plus 15 more. I have found gluten free substitutes for things that I can't have. I can sit down and eat a meal that is meant for 4 people by myself. I just stuff myself until I am ready to burst. :o

I know that this is my way of trying to comfort myself - I'ts not working, but I'm doing it anyway. :(

I just started seeing a counselor to help me try to get past this.

Cindy

GlutenFreeAl Contributor
GlutenFreeAl
Posted

You know what? I do this too. And I know that it's totally psychological and emotional and yet I do it anyway.

It really bothers me that anybody else can eat whenever they are hungry and eat whatever they want and I can't do that. I can't go grab takeout for dinner after a 12 hour workday, I have to go home and cook myself something.

So when I feel good I eat. A lot. Everything in sight.

Then I inevitably feel icky and skip a meal or two because I'm so full and bloated from my bingeing. (Usually it's cereal, by the way. Not sure what that's about.)

So not healthy.

If anyone has a solution to this, I'd LOVE to hear it!!!

GC1 Rookie
GC1
Posted

Hopefully you won't have an extreme appetite for 4 months as I did, but relax it's likely just your body (attempting to) repairing damage from partial 'nutritional starvation'... though it would be a good idea to eat [during this time] the highest quality food you can--that's acceptable to your individual system. A recently gluten-free Celiac will likely repair bones, muscle, organs, even hair, gums, teeth, nails, etc....... The hardest part is trying to avoid candy, ice cream, and all the more enjoyable cravings... sure was for me.

GC

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
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