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Asthma And Celiac


jackie4

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jackie4 Apprentice

My daughter , Lizzie, was just diagnosed last week- through a positive biopsy. She is 14 and has exercise induced asthma. Has anyone noticed if this was directly related to the celiac. Also since having the stomach pains they seem to comemore often when she is running and they are more severe than usual ? Is this something that is normal with celiac disease? Jackie


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sasha1234 Newbie

I'm new to all this too and there are many people on this board who are more knowledgeable than I am. However, my GI is also a researcher and is studying the relationship between asthma and celiac. It seems that stomach problems tend to come first and then asthma. I've had stomach problems from birth and was soon after diagnosed with serious asthma, though my stomach problems are only in the process of being diagnosed as celiac 19 years later. As for stomach pains related to exercise, I can't help you there. I personally don't suffer from that.

num1habsfan Rising Star

well i dont know if they are related, but i do know that i didnt get asthma until after i got celiac and was gluten-free...

and i dont run because i'd probably drop dead from asthma attack and too out of shape :P so cant help ya there..

~lisa~

rsavage Newbie

Dear Jackie,

I am a 62 year old female. I was diagnosed 4 years ago. I had been told that I had exercise induced asthma at age 40. As I began to recover I noticed that I didn't need my inhaler any more. Now I've been told that I don't have asthma. I do notice that when I accidentally get some gluten my chest tightens. I can only tell you my experience. Also, when I started feeling better the stomach pains decreased. I really can only say this was my experience. I hope your daughter is feeling better and these things are just minor setbacks. Tell her she is soooo luck to get the information now. Also, tell her I hope she will be better soon. Lots of Luck to you both, R. Savage

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    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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