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- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Virus, celiac disease or both?
@trents I do like the idea of the shake! yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state. @RMJ how impre... -
- RMJ replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Virus, celiac disease or both?
I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digest... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Virus, celiac disease or both?
@Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test... -
- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Virus, celiac disease or both?
Hi @RMJ, Thank you for you input. I really appreciate all view points on this, more than you know. Maybe I’ve done too much research. One thing I read would point to yes and then along comes all these variables that convinces me that my levels were high because of having a virus. I don’t like bread or pasta that much but seriously lov... -
- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Virus, celiac disease or both?
Thank you @trents! I have been going back and forth on some gluten free some days and some days not trying to see if there is any reaction to how I feel. As much as I don’t want to I think given the blood test not being 100%. It’s fair to say an EGD is necessary. I do think before I go through with that I would run another TTG IGA...
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By Shining My Light · Posted
@trents I do like the idea of the shake! yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state. @RMJ how impressive to be able to make all those baked goods! I’ve been tasting some gluten free items. There is one thing I found that’s good and it’s Siete Cinnamon churro chips put over ice cream with chocolate syrup . Tastes like fried ice cream! I’ve also noticed so many more things have a “gluten free” symbol on them. Restaurants mostly but also a lot of packaging. Maybe it’s always been there but obviously since my blood tests I’ve noticed. I really hoped I would find someone who like me was sick a few weeks prior to getting their TTG test and it was raised for a viral reason, or it’s a “fluke” or something else. -
I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digesting” small amounts of gluten contamination. You would NOT want to take it while eating bread/cake/doughnuts in preparation for an endoscopy because it could make your body react less. I have finally figured out how to make a number of gluten free baked goods. Cakes, cream puffs . . . My neighbors know they are gluten free but say they would never guess otherwise.
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@Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test results. If the idea of eating 4-6 slices of wheat bread daily to get 10g of gluten is repulsive to you then go the health food store and buy powdered gluten, weigh it out on a food scale, and make shakes with it. Many report that Gliadin X helps them in a significant way to ward off unpleasant reactions to minor gluten exposure, such as you would get in a cross contamination situation. It will not work to prevent reactions when used with large exposures to gluten.
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By Shining My Light · Posted
Hi @RMJ, Thank you for you input. I really appreciate all view points on this, more than you know. Maybe I’ve done too much research. One thing I read would point to yes and then along comes all these variables that convinces me that my levels were high because of having a virus. I don’t like bread or pasta that much but seriously love baked goods. I’m scared to give those up “for no reason” I’m also scared to be doing damage to my body. I’m stuck in a situation where I’m scared and confused either way. It’s hard for people with silent celiac because you don’t “feel” like you are doing the right thing. I did see some advertisements on here about Giliad X? Is that a supplement for gluten and is insulin for diabetes? -
By Shining My Light · Posted
Thank you @trents! I have been going back and forth on some gluten free some days and some days not trying to see if there is any reaction to how I feel. As much as I don’t want to I think given the blood test not being 100%. It’s fair to say an EGD is necessary. I do think before I go through with that I would run another TTG IGA if my doctor would approve that. If levels are the same, I have no choice. 😔 In the mean time I’m going to enjoy gluten. The biggest problem I have is the thought of eating 4-6 slices of bread per day. That’s crazy! There has to be something comparable. Possibly an “average” of about that per day? Is there any lists of foods out there that are trade offs? (4 slices is = 1 donut)
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