Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ever Feel Gluten-ed Even When You're Not?


ebrbetty

Recommended Posts

ebrbetty Rising Star

hi guys, my belly's really been hurting and I've been very bloated and gassy the last 2 days, for the life of me I can't think of anything bad I could have eaten. I had something like 4 or 5 good days and now this..seems to be a pattern where I feel good for a few days, think I'm over the worst of this then its back again.

do any of you ever feel this way?

thanks Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I do. I can go up to a week now and have no problems. Then for whatever reason, I get slightly acid D for a few days, and then it gets better. I think that it may be a little gluten, but also the healing process. The good days seem to get longer and longer. I am now nowhere close to the days where I could not leave the house and my bottom was on fire. It is slow progress, but progress. And to add, that you get better knowing where the gluten is comming from.

My reaction to gluten in the beginning was within a half hour, now I'm up to around 24 hours. I would say that't progress.

When I to get glutened, I revert back to a basic diet that I know is a sure one. Hope this will help

Lisa B

ebrbetty Rising Star

thanks lisa, I was wondering if it could be something I ate days ago, I used to be able to look at what I ate that day, but now I think it could be from the day before or longer. its so discouraging to me to have a few good days, then I feel like I'm back to the beginning again, my belly looks like I'm 5 months along and the pains are awful, everytime this happens I end up thinking "screw it, this gluten-free diets not working" then hubby will remind me of the good days and say "you may still be in pain, but your not on the floor crying all the time" hes right, but that doesn't stop the pain now!

Guest nini

I'm wondering if sometimes it has anything to do with hormone fluctuations.

ebrbetty Rising Star

you could be right nini, I wondered about that too

wolfie Enthusiast

This seems to happen to me to. Last week was a bad week, this week is much better. I agree about it being part of the healing process. I know that I also have other food intolerances that could be part of my problem.

Hope you feel better soon!

ebrbetty Rising Star

thanks kim, sorry to hear others are still dealing with this, but at least i'm not alone..keeps me from giving up, but i still think about eating a sub everyday :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

I am with you on the sub....my sister went to Subway yesterday and I told her I was going to live vicariously through her.

I did make some good bread yesterday though that has me satisfied for now. :)

ebrbetty Rising Star

would you like to share the recipe? I'm just learning to bake bread, have only done it once and it was a mess :blink:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748

    Jamie B
    Newest Member
    Jamie B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.