Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Test

MACE

By MACE
in Related Issues & Disorders

Recommended Posts

MACE Rookie
MACE
Posted

My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.

Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.

Will be waiting to see what some of you think of all of this yeast thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)

MACE Rookie
MACE
Posted
  • Author
Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)

I will be having the scratch test on the 21st, both for food and air born. I am interested to see what shows up. Good luck and let me know how you do with your testing.

ravenwoodglass Mentor
ravenwoodglass
Posted
My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.

Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.

Will be waiting to see what some of you think of all of this yeast thing.

I think they don't know much about celiac. I went through skin testing before my allergist set me up with an elimination diet. I showed up positive to everything except beech trees! However after becoming gluten-free those allergies 'went away'. The only thing I am still 'allergic to is my kitty's spit (my eyes will water when she sucks on my arm, strange kitty that she is). I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.

plantime Contributor
plantime
Posted
I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.

I believe this is true for pharmaceutical companies, too. They haven't figured out how to make us pay them for what we eat!

Carriefaith Enthusiast
Carriefaith
Posted

I have had allergy testing done. I've had skin prick tests and blood tests and I found out that I am allergic to wheat, milk, and yeast. I also have celiac disease in addition to these allergies.

If your tests come back negative for wheat, barely, rye, oats, and yeast, then I would suggest that you may be intolerant or sensitive to gluten. You could also ask for a celiac gene test to see if you have a celiac gene.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,144
    • Most Online (within 30 mins)
      7,748
    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.