Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Test


MACE

Recommended Posts

MACE Rookie

My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.

Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.

Will be waiting to see what some of you think of all of this yeast thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)

MACE Rookie
Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)

I will be having the scratch test on the 21st, both for food and air born. I am interested to see what shows up. Good luck and let me know how you do with your testing.

ravenwoodglass Mentor
My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.

Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.

Will be waiting to see what some of you think of all of this yeast thing.

I think they don't know much about celiac. I went through skin testing before my allergist set me up with an elimination diet. I showed up positive to everything except beech trees! However after becoming gluten-free those allergies 'went away'. The only thing I am still 'allergic to is my kitty's spit (my eyes will water when she sucks on my arm, strange kitty that she is). I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.

plantime Contributor
I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.

I believe this is true for pharmaceutical companies, too. They haven't figured out how to make us pay them for what we eat!

Carriefaith Enthusiast

I have had allergy testing done. I've had skin prick tests and blood tests and I found out that I am allergic to wheat, milk, and yeast. I also have celiac disease in addition to these allergies.

If your tests come back negative for wheat, barely, rye, oats, and yeast, then I would suggest that you may be intolerant or sensitive to gluten. You could also ask for a celiac gene test to see if you have a celiac gene.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    4. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    5. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.