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Doctors for celiacs after being diagnosed

KDPatti

By KDPatti
in Doctors

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KDPatti Newbie
KDPatti
Posted

I was diagnosed almost 20 years ago and have always had difficulty finding doctors who dealt with after effects and autoimmune disorders after being diagnosed and sent on your way to eat gluten free for the rest of your life.  I was lucky enough to live outside Baltimore when diagnosed and Dr. Fasano @ UMD. Now I live in Florida and can’t find a doctor who knows it exists but nothing else.  Can anyone help me?  Thank you, Kathleen Patti 

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cyclinglady Grand Master
cyclinglady
Posted

Have you met a doctor who is at least open-minded and is willing to follow celiac disease recommended follow-up care guidelines?  I did this with my new PCP after I was diagnosed by my GI.   I presented my health history and also a family tree of health issues to my new PCP.  I also gave her guidelines from University of Chicago.  Luckily, she was supportive.  When she left to become a hospitalist, my current PCP had the data (which he read because it had been scanned into my file).  At my first meeting, he took the liberty of pre-ordering things like antibodies testing, bone scan (already had fractures)  and vitamin/ mineral tests besides the standards (e.g. CBC).  

Hopefully, someone has some doctor recommendations.  Maybe let someone know your general location.    Would hate for you to be in Orlando, but their great doctor is in Miami.  

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