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Dropping TTG-IgA markers, other symptoms

Phosis
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Phosis Explorer
Phosis
Posted

Hey guys!

Been on this Celiac journey for close to 8 months now. Been gluten free all except a bad poisoning two months ago by accident, when I mistook packaging to be gluten free.

I have talked before about terrible indigestion, and bowel looseness. This eventually led to terrible fatigue, brain fog, light-headedness down the road. Low B12 was the culprit for a lot of this. One of my eyes is still buggy, though I have been to a neurologist and they are keeping an EYE on it (HAH) but don't suspect anything major as my symptoms have decreased dramatically and are never persistent.

That said, upon diagnoses, I was still a "low positive" with a TTG-IgA of about 25. Near total villous atrophy. All evidence definitely pointed to celiac, as several doctors including my GI agreed. I even had a barium swallow later down the road and they didn't find any issues with my digestive tract. Ultrasounds good, blood work has tested well several times looking for any auto-immune, pancreas, gall-bladder, or other issues. My doctor tells me on paper, I have been a perfect bill of health.

Most recent blood test to check on Celiac as part of my 6 month post diagnoses shows my TTG-IgA has reduced to 2.1 down from 25! I won't see the GI for another month or two, as the office where she works says the results from the blood work look good and they don't need to rush to see me. And my family doctor agrees. I still get odd fogginess/lightheadedness sometime.

I just wanted to know from some of the long timers here - how does that sound in terms of recovery? I have a TON of anxiety about this. It basically ruined my life for eight months, and even cost me a job. But I have pulled myself back together, I function at about 90 percent on a daily basis, and even start a new job wednesday. Just wanted to hear what the consensus was, and get hopefully some positive encouragement, as the fact that I still feel "funny" (bowel issues are basically gone, even indigestion is very mild.) bothers me.

Please and thank you!

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cyclinglady Grand Master
cyclinglady
Posted

Wow!  You are doing great.  Just eight months in too.  Be patient.  Things will continue to improve.  Most members report taking a year or two to really feel 100% better.  Congratulations on your new job.  😊
 

 

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      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Work friends & food

      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      Work friends & food

      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
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