Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Antibody Test

VeronicaTheCeliac
 Share

Recommended Posts

VeronicaTheCeliac Rookie
VeronicaTheCeliac
Posted

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

This number typically goes down after a few months, so it does make sense to double check your diet to be sure it is 100% gluten-free. Do you eat out at restaurants? I ask because this is a common source of contamination:

 

 It is also a good idea to double check any medications you take regularly, as well as lipstick, lip gloss, and cosmetic products.

rehh05 Apprentice
rehh05
Posted
2 hours ago, VeronicaTheCeliac said:

I was diagnosed with celiac disease at the end of February of 2020 with blood test levels of over 250. I have been completely gluten free for about 4 months now and went to redo the blood test and my levels have decreased to 79. Is it possible  that because my levels were so high it is just taking longer for the antibody to go back to normal or could there be a hidden case of gluten. I have only been eating gluten certified foods and whole foods (meat, fruits and veggies) the only thing I'm thinking could be my birth control (i'm on YAZ). Is this normal?

Also you might be getting cross contaminated by things in your kitchen. Your cutting board, your pasta drainer, inadvertent crumbs from other people. Believe it or not, affectionate significant others who consume gluten can spread gluten to you. Gluten is very sneaky. 

cyclinglady Grand Master
cyclinglady
Posted

No!  Antibodies can take over a year to normalize.  You are doing just fine.  Doctors look for a downward trend.  Once normalized, if they become elevated again, it may be cause for concern.  This link for a reputable celiac research center explains it well: 
 

https://celiacdiseasecenter.columbia.edu/celiac-disease/follow-up/

The celiac antibodies tests were designed to help diagnose celiac disease and NOT really meant  to check for dietary compliance.  Why do doctors and major celiac centers recommend them for follow-up testing?  Because they are the only non-evasive tool-in-toolbox.  The best way to determine healing is a repeat endoscopy.   Most GIs will wait 3 to 5 years  to re-scope because they know it takes time for the vast majority of celiacs to master the diet.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kwinkle
      - Kwinkle replied to Kwinkle's topic in Related Issues & Disorders
      2

      A question - eggs & dairy

      Thank you, Trents 😊
    2. trents
      - trents replied to Kwinkle's topic in Related Issues & Disorders
      2

      A question - eggs & dairy

      First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently...
    3. trents
      - trents replied to Waterdance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Diagnosed gluten allergy but not Celiac

      Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is...
    4. Kwinkle
      - Kwinkle posted a topic in Related Issues & Disorders
      2

      A question - eggs & dairy

      Hello everyone. For those of you that I’ve had a sensitivity develop to eggs and dairy (one or both) I am wondering for those who were able to go back to eating these things how did you discover that it was all right? I have a sensitivity to both, but I really miss eggs and I really miss dairy but I’m afraid to try them again so I’m wondering what other...
    5. Waterdance
      - Waterdance posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Diagnosed gluten allergy but not Celiac

      Hi and thanks for this place to ask questions. I have been diagnosed with a gluten and milk allergy but so far I have no Celiac diagnosis and honestly I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease. I've come here because I'm having problems and you all would be knowledgeable about gluten free diets. An allergist...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,784
    • Most Online (within 30 mins)
      7,748
    susanmills
    Newest Member
    susanmills
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kwinkle
      A question - eggs & dairy

      By Kwinkle · Posted

      Thank you, Trents 😊
    • trents
      A question - eggs & dairy

      By trents · Posted

      First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently truly gluten free diet. But you will just have to test the waters. Experimentation with those foods is the only way. Realize also there are thresholds of tolerance. You may be able to consume those foods without issue but not as often and in lesser amounts than in your pre celiac days. So, start small and go slow.
    • trents
      Diagnosed gluten allergy but not Celiac

      By trents · Posted

      Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is outdated and deficient, as is also true of many physicians. Actually, now there are over 200 symptoms and medical conditions that have come to be associated with celiac disease and the list keeps growing.  And you use the term "gluten intolerance". What does that mean to you? Actually, gluten intolerance is a catch all term referring to two different gluten disorders: celiac disease and NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is an autoimmune disorder characterized by ingested gluten triggering the immune system to attack the lining of the small bowel. NCGA or just, gluten sensitivity, for short, is a reaction to gluten that is not autoimmune in nature (neither is it an allergic reaction per se) but it's symptoms overlap with that of celiac disease. We actually don't know a lot about NCGS yet but some experts believe it can be a precursor to celiac disease and it is 10x more common that celiac disease.  There are some blood antibody tests that are pretty specific to celiac disease but they require that you have been eating normal amounts of gluten for weeks/months prior the blood draw. Having the blood draw done while being gluten free or even having been on a reduced gluten diet will invalidate the testing. There was a recent article posted in this forum about testing being developed that did not require breaking a gluten fast but it is not available yet. When and if it is, that will be a giant breakthrough because so many people experiment with the gluten free diet before they ever get tested and can't safely utilize the "gluten challenge" because their reactions are too severe. So, they can't distinguish whether they have NCGS or celiac disease and must live with the ambiquity.  There are also some people who react negatively to all cereal grains. You may be one of them. Technically speaking, gluten is found only in wheat, barley rye, and some cultivars of oats. But all cereal grains contain proteins that more or less are similar to gluten and, apparently, similar enough to cause a gluten-like reaction in some people.  Have you experimented with non-cereal alternative grains like buck wheat or sorghum? Can you substitute potatoes for grains to get calories? Have you looked into SIBO (Small Intestine Bacterial Overgrowth)/histamine intolerance? This could also explain the problems you are having. You are not going to want to hear this because you will feel like you are starving but the Auto Immune Protocol Diet will probably make you feel a lot better.  
    • Kwinkle
      A question - eggs & dairy

      By Kwinkle · Posted

      Hello everyone.  For those of you that I’ve had a sensitivity develop to eggs and dairy (one or both) I am wondering for those who were able to go back to eating these things how did you discover that it was all right? I have a sensitivity to both, but I really miss eggs and I really miss dairy but I’m afraid to try them again so I’m wondering what others have done. Thank you 
    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Hi and thanks for this place to ask questions. I have been diagnosed with a gluten and milk allergy but so far I have no Celiac diagnosis and honestly I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease. I've come here because I'm having problems and you all would be knowledgeable about gluten free diets.   An allergist diagnosed me with a gluten and milk allergy about 15 years ago but she said "if you eat a lot of it, don't worry about it." This haunted me because I did not eat a lot of it but it was in my diet. Going 100% gluten free was daunting so I struggled with lowering my intake and observing results when adding it back. Due to aging, I think, the problem is worse now. I know ingesting gluten almost immediately causes a hemorrhoid flare up. It's very painful and I have severe chronic issues with it and even one surgery which did not solve much and the problem came back with vengeance. I know from my own experiments that I can build a tolerance to gluten in my diet but overall if I want to avoid chronic pain and discomfort I should just eliminate it entirely.   When it comes to my diet, I found not only gluten to be problematic but all grains! This is terrifying to me. Keeping a grain free diet was difficult and left me hungry all the time.   My question for you all is do you have any tips to help me live on a grain free diet sustainably long term? And Do any of you know of or heard of hemorrhoids, constipation and diarrhea being main symptoms to gluten intolerance?
×
×
  • Create New...