Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Gi Visit Today, Good Or Bad


hungryforlife

Recommended Posts

hungryforlife Apprentice

So, I had my visit with the gastro this morning. You fill out four pages of questions regarding symptoms you are feeling (head to toe - neuro, gastro, cardio, etc.) before you even get there, then she reviewed it with me stopping to ask questions about some of my issues. The biggest of course being fatigue, nausea and dizziness.

I never mentioned celiac's to her, but it was on page 3 regarding family diagnosed with any issues. And I had given her my blood work from the last two visits to the dr. One was the two test he did for celiac's (IgA/IgG (the numbers were 3/4 respectively) But I am not sure if she saw them while we were talking.

She never really indicated what could be going on one way or another until we were talking about my diet and the a few years ago my husband had did weight watchers and lost 100 pounds and during the same time I was diagnosed with post-partum depression so started taking anit-depressants. During the three years that followed our diet became better and better and I starting getting sicker and sicker. Refining my diet as I went along. Cutting out heavy, fried, fast, dining out, etc and going to lots of fruits and vegetables, chicken, only eating red meat maybe once a week, and whole grains. Then I told her that I had been eating oatmeal every morning for the past two and a half years and instead of feeling better, I had continually been getting worse with the dizziness, the nausea, loose bowels etc.

She started rummaging through my chart at that point and as she was rummaging, I was getting to the point that my brother had been diagnosed with Celiac's a few years ago.....and she said that is just what I was looking for to see if there was a family history. I then told her about the pedi and the fistula that my son had and how is pedi had mentioned testing him for it when he was older. I told her I never really put two and two together until talking with my brother last summer and knowing that as healthy as I was eating I should be feeling great, but instead I feel like I am getting worse.

She said that she was ordering both an upper and lower (fun fun) series and the doctor would speak with my hubby afterwards and that she would follow up with me in about two weeks after the endo/colon. She was getting up to leave and I asked if she was going to order a celiac panel and she said no, the the doctor had done it. I commented that he had not done the whole test but only two, to which she said there is only a few and that she had noted the celiacs on my chart so that when the doctor did the endo he would get into the (_______) area of the small intestines to do a biopsy (If he could get in there) sorry, but I dont know what area she said. She reiterated about three times that that area would be able to pick it up?

So what do you guys think? I feel like the light bulb went on for her when I mentioned the oatmeal. She followed up with questions about other wheat products and I said no, just that my body would do a total body dump about once or twice a month and the only time I could create the nausea and dizziness and urgency to go was when I ate simple carbs, cake, donuts, pastries, etc. which she attributed to sugar, not wheat? Although I can eat candy (without wheat) without problems?

Thanks in advance for your input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

It sounds to me like she is at least willing to consider the possibility, which I think is a good start! She sounds like she at least knows some basics like it runs in families/is genetic! One question you might ask is how many samples they'll take during the biopsy...I think the general consensus is that it should be more than just a couple.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.