DH or eczema??

[Louise0895]

I’ve had this rash appear on my elbow many many times. Not very itchy but noticeable. I’ve also had it appear once on both knees and hands. I’ve had ongoing stomach problems but a negative celiac blood test three times. I do have the celiac gene. Could this be DH? 

[ravenwoodglass]

It could be DH. When DH heals it leaves purplish scars usually. If you are still eating gluten you could see a dermatologist who will biopsy NEXT to an active lesion.

It seems that folks with DH are more prone to false negatives on celiac screenings. What celiac blood tests did they do? Have you ever had an endoscopy done?

[Louise0895]

2 hours ago, ravenwoodglass said:

It could be DH. When DH heals it leaves purplish scars usually. If you are still eating gluten you could see a dermatologist who will biopsy NEXT to an active lesion.

It seems that folks with DH are more prone to false negatives on celiac screenings. What celiac blood tests did they do? Have you ever had an endoscopy done?

They did the IGG and IgA blood tests. I did have an endoscopy years ago and they didn’t find intestinal damage. Soon after is when the rashes started appearing and now I’ve had them for years. A few months ago I saw my dermatologist about it and he said it looked like DH but didn’t biopsy because it wasn’t active at the time. It had scabbed  over. I thought i was free of a celiac diagnosis but doctors keep coming back to it. I’ve also had many nutritional deficiencies and a heart problem. I keep looking for an answer!

[ravenwoodglass]

If you can't get retested, keeping in mind the possibility of a false negative, your best recourse may be to simply give the diet a good strict try for at least a month or two. False negatives on blood tests delayed my diagnosis by many pain filled years. Sometimes the body gives us answers that the tests don't.