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Any Silly-acks From Ct?


bluckii

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bluckii Rookie

Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

  • 2 months later...

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rootlings Newbie
Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

I too am newly diagnosed along with my 19 year old daughter. We live in Simsbury, Hartford County and are looking for a support group also. Any help would be great.

Linda

  • 2 years later...
Reggiac Newbie

Hi, I just got my official biopsy diagnosis for Celiac disease and want to start a support group in Simsbury and thereabouts. I have already met two people who are interested in meeting to share information, recipes, etc. I was thinking I would post a sign, if they will let me, in Avon's Garden of Light. Anyone out there interested?

sparkle2085 Newbie

There are support groups in CT- there is one that meets in Manchester, I have the email of one of the women who runs it if interested.

HAK1031 Enthusiast

Hey all! I'm from South Windsor, and the Manchester group doesn't meet regularly. However, for the Simsbury crowd, I grew up there, and my Dad still lives in Avon, so I'm over there a few times a week. If you do get a group together, that's be great!

EliLB Newbie
Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

Hi,

I am a celiac mom recently diagnosed here in the heart of New Haven. Anyone interested in mutual support?

  • 3 months later...
lalia Newbie
Hi, I just got my official biopsy diagnosis for Celiac disease and want to start a support group in Simsbury and thereabouts. I have already met two people who are interested in meeting to share information, recipes, etc. I was thinking I would post a sign, if they will let me, in Avon's Garden of Light. Anyone out there interested?

HI! I don't know if you are still looking to do this - but I live in West Hartford and work in Farmington. I would love to have a support group to work with. I was just diagnosed in the past month and need all the support I can gather.


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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