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Does this look like DH

Jfish

By Jfish
in Dermatitis Herpetiformis

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Jfish Newbie
Jfish
Posted

I have been having this rash come and go since Feb. My biopsy is Sept 1st. 
I’m kind of concerned it will clear up before then even though I will keep eating gluten.

https://ibb.co/1sgkKjx
https://ibb.co/LnyZ6Z6
https://ibb.co/gyGQ315

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trents Grand Master
trents
Posted

Do you mean an intestinal biopsy or do you refer to a skin biopsy?

Jfish Newbie
Jfish
Posted
  • Author

Skin biopsy

Scott Adams Grand Master
Scott Adams
Posted

To me the images seem consistent with DH, but to confirm this you'd need to go to a dermatologist who understands DH and knows how to do the biopsy.

Can I assume that you are eating gluten daily? If not, your test may be a false negative. If you are eating gluten I'd also recommend that you get a blood screening done for celiac disease:

 

  • 2 months later...
EF-ATL Apprentice
EF-ATL
Posted

@Jfish Did you ever get a result? I have had an off-and-on rash on knees/elbows that looks EXACTLY like that. Because I'm already on a gluten-free diet, getting diagnosed through the traditional route is complicated. Thanks!

  • 1 month later...
tmcs Rookie
tmcs
Posted

It looks just like mine, only without the scabs from scratching!  

Levi Apprentice
Levi
Posted
On 8/16/2020 at 11:04 PM, Jfish said:

I have been having this rash come and go since Feb. My biopsy is Sept 1st. 
I’m kind of concerned it will clear up before then even though I will keep eating gluten.

https://ibb.co/1sgkKjx
https://ibb.co/LnyZ6Z6
https://ibb.co/gyGQ315

Looks very similar... but if it doesn’t blister over then it ain’t DH! The immune system sends an antibody to pressure points which causes the rash, but the “gluten bumps” always form an ever so fragile blister to protect the antibody... Do not stop eating gluten before your biopsy of affected rash area or you will get a false reading. Bn dealing with it since Nov 2004. Dg’d December 2006. 100% gluten-free diet is best and only cure... Dapsone is a very dangerous drug if taken long term. 
 

Btw, if the rash is DH, you can use a white paper towel or clean white cloth, you can literally rub off the blisters til the skin peels; dawb (sp?), or soak up the liquid from the rubbed off area of new skin and the itch goes away. But it will leave a slight lighter patch of skin, kind of like a temporary scarring... Your welcome. 😇

 

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      By knitty kitty · Posted

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      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
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      By Rebeccaj · Posted

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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