Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Feel Better After Going gluten-free?


Sandyo

Recommended Posts

Sandyo Apprentice

My blood test was neg and I'm getting a copy from the Doctor today. I thought I had this figured out despite the neg test results....but after going gluten-free for about 1 1/2 weeks now, I'm starting to feel bad again. Even though I'm not eating gluten, I still get naucis every time I eat gluten-free or gluten-free free. My stomach just churns and I have a strange sensation in my chest like my heart is beating differently. I'm also tired and just feel yucky. I'm fine in the morning and can run 13 miles no problem. But as soon as I eat, I feel bad. It just feels like my stomach is raw.

Is this normal? Will I feel better, than worse, then better after going gluten-free? If gluten is my problem then why does my stomach feel yucky even when I don't eat it?

I just ordered my Enterolab Stool test on Sat night. I wasn't going to because I thought I was having a positive dietary reaction. But now I just don't know anymore.

How long should I stay gluten-free to know if that's my problem? The only thing I eat in question over the weekend was jello and cool whip. Is there gluten in either of those that I'm not aware of? I'm so new, it's hard to know where the hidden gluten is.

Oh, and is there a list of foods that we shouldn't eat that have hidden gluten? And how do you know what kinda starch it is if it says modified food starch?

Thanks for any comments you might have to help me know which direction to go.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

I have been trying to stay gluten-free for about 1-1/2 now. the only time that I get a reaction is if I go out to eat and they Gluten me. I never feel good, but I do feel better if I dont eat. the only time that I feel good is if I dont have any food in my stomach. It is so frustraing because I dont need to loose anymore weight and plus I am hungry. But since I get such negitive results from eating I hate doing it.

I am really sorry that you feel this way, I can totally understand.

As for the modified food starch, my rule is that if it does not state it then I will call. I dont want to take a risk.

I wish you the best of luck

Amanda NY

StrongerToday Enthusiast

You might want to stick with a bland, starchy diet for a while. Are you eating dairy or soy - some people are very sensitive to other things too.

jenvan Collaborator

Sandyo-- Go here to see safe and forbidden ingredient lists--very helpful when shopping: https://www.celiac.com/st_main.html?p_catid=12

It is hard to say on your question--some folks experience immediate improvements, some of us do get worse for a bit, myself included...and for me it has took several months to notice any initial improvement. What lead you to think you had Celiac or gluten intolerance initially?

hungryforlife Apprentice

Sandyo ~

When I went gluten free (for a week like you) I noticed that simple carbs and sugars made me really ill. Dizzy, neaseated, etc. All of my CBC blood test came back normal except my blood sugar which has been gradually rising since I started eating oatmeal three years ago. My colestorol went down by 57 points though! Now, I notice if I don't eat regularly, or I have simple carbs (or high glycemic foods) that I still get dizzy and nausea. I started adding orange juice to my morning routine to balance out the blood sugar, and then maybe adding some more protein to your diet (especially in the morning) will level out the blood sugars further. Gluten-free (especially prepared products) can be higher in sugar than regular gluten breads products.

Hope you feel better soon.

erin24 Explorer

Sandyo,

I am in the same boat as you...negative blood tests and I have just begun the gluten-free diet. I have only been gluten-free for 3 days but there has been absolutetly no improvement. I know it takes a while so I shouldn't really be expecting results so soon but it's hard not to get too excited.

Let me know how it goes for you and I will keep you informed about me too that way we can use each other as an indicator for one another.

Sandyo Apprentice
Sandyo,

I am in the same boat as you...negative blood tests and I have just begun the gluten-free diet. I have only been gluten-free for 3 days but there has been absolutetly no improvement. I know it takes a while so I shouldn't really be expecting results so soon but it's hard not to get too excited.

Let me know how it goes for you and I will keep you informed about me too that way we can use each other as an indicator for one another.

Will do. I got so depressed last night that I had a piece of a desert I made my son with Angel Food Cake in it. It just got to me. All these things I can't eat, special trips to the health food store and $90 each time. Making gluten-free bread and a whole seperate shelf in my pantry....and I still feel like crap!! Of course 1/2 hour after I ate it, I felt worse!!! Guess I had a little tantrum! :)

I'm being good today and feel a little better. Still some dizzyness. I'm also trying to eat less each time I eat. I think that will help. I'm going to look into the blood sugar comments above. That's kinda ringin a bell with me.

I hope you start feeling better soon.

Sandyo ~

When I went gluten free (for a week like you) I noticed that simple carbs and sugars made me really ill. Dizzy, neaseated, etc. All of my CBC blood test came back normal except my blood sugar which has been gradually rising since I started eating oatmeal three years ago. My colestorol went down by 57 points though! Now, I notice if I don't eat regularly, or I have simple carbs (or high glycemic foods) that I still get dizzy and nausea. I started adding orange juice to my morning routine to balance out the blood sugar, and then maybe adding some more protein to your diet (especially in the morning) will level out the blood sugars further. Gluten-free (especially prepared products) can be higher in sugar than regular gluten breads products.

Hope you feel better soon.

You might be on to something here. Know that you mention it....I do feel worse and dizzy after eating sugar. I started boiling some eggs to eat after my morning workout. I'll ad in the OJ and see if that makes any difference. I did eat meat and potatoes the other night and no sugary stuff and I felt fine!. Maybe reducing the sugar and increase protein will help. I've been worried I haven't been getting enough protein (cause I'm a runner and need it after a hard run) that's why I started with the boiled eggs. I used to eat oatmeal everymorning and protein shakes and raisin bran cereal....but I think my increase in grains is what triggered this intolerance response. Thanks for your help. I'll look in this direction. Appreciate it very much!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

It is normal to good and then bad and then good again. It can take a long time for your digestive system

to get better. Also you could be having withdrawal symptoms. I was nauseous in the beginning to. Make sure all your cosmetics and toiletries are gluten free also.

jenvan Collaborator

I also had to adjust my eating post gluten-free on blood sugar... Absorbing more has changed some of the foods I like. I used to love candy, now I have no desire for it--too sweet and gives me a headache! So listen to your body--absorbing and healing does change how it reacts to foods.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.