Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Back The Weight


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I can empathize with your situation. I am 5'5 and got down to 95 pounds. I was so afraid to eat anything because everything made me feel bad. Even after going gluten-free, I had awful nausea and stomach problems for awhile. I didn't begin to gain weight back for about 6-8 months, unfortunately (though I gained back about 5 to 8 pounds initially). I'm now finally back to my pre-Celiac days' weight, but it's taken me a year and a half to get here. However, my intestines were really damaged and my body still feels like it's healing. So, give it some time--you will eventually gain weight back.

In the meantime, it's all about "good" fats--peanut butter, Ensure, olive oil, pure butter. I also began eating more cakes and cookies to gain weight back. I figured I had been ill for so long that it was time to indulge :) If you're still feeling ill, though, eat simply: pure fruits and veggies, potatoes, fish, and chicken. Then, on to the good stuff :)

Hang in there--it will get better, but it may take some time. Good luck!

par18 Apprentice

Hi Kim

I understand where you are coming from. I was there about 11 months ago. I was approx 30 lbs underweight when Dx'd in May 2005. At first I was scared and not hungry. A visit to an RD set me up on a diet of mostly naturally gluten free foods. In the beginning I was eating almost 3000 calories a day. This consisted of 3 meals and 2 snacks a day. It seemed like all I was doing was eating but I felt the only way to gain weight is to eat. I do not know how much of what I ate in the beginning was being absorbed but my main symptom (diarrhea) went away in only two days. I don't think I missed a meal for about the first 2 months. After about 12 weeks I had gained about 10 pounds and started to relax. I resumed my normal activities and my appetite returned. Today I have gained back all the weight I needed. If you have to do so chart a sample diet for about a week and try as best that you can to eat at regular intervals. The key for me was making eating a routine. For now try to view food as a fuel and not some restrictive measure. Also try to get your mind off the disease by focusing on other things that interest you. This website is a valuable source of information. The snacks I ate in the beginning consisted of yogurt,nuts, peanut butter on gluten-free toast,fruits and chips (corn or potato). Good luck to you.

Tom

bluejeangirl Contributor

;)

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Kim,

Do you still have an uneasy feeling when your stomach is full. Food issues are not easy to get over. I can tell you what I'd eat to gain weight but it mostly involves high fat foods and desserts after I'd ate a nice lunch or supper. You don't have to be scared to eat anymore. and keep telling yourself that. You said you eat lots of salads, well try eating smaller salads with like a grilled cheese on kinnikinnick Italian white tapioca bread. Have some chips with it. Have two Pamela's cookies the ones that are already made. It will take awhile to stretch your stomach and eat normal. But I keep looking at what you eat and its all the stuff I'd have if I wanted to lose weight not gain. ;)

Lollie Enthusiast

I can totally relate to you! I am 5'9' and got down to 110. I got very scared. I lost weight when I started the diet. but now I find that I have gained about 20lbs and I eat little snacks all day! i agree that it will take some time to allow your body to heal and it will take time to stretch your stomache back to a more normal size. I think I just ate like kid sized meals mostly, then I would have a snack or snacks, in between. I always thought that food would make me sick, because it really was, but now I know that if I avoid the ones that make me sick, the others make me feel good! It has taken me a while to switch my mind over, but it is so much better now! I drank insure, and I love chocolate milk (I am not lactose intolerent). I also started having ice cream. All the things that you like, you should stock your house with and have them ready to eat.

Good Luck!!!!!!!

Lollie

ravenwoodglass Mentor
Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Something that helped our family was carnation instant breakfast, the powder, we woould add a shake with it whole milk and ice cream a couple times a day. If you can have dairy they come to about 500 calories each or more. Make sure the ice cream is gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.