Time from eating gluten until symptoms come?

[Ladybird]

Hi,

I just wondered when your symptoms appear after you have eaten gluten? Mine seem to be about 7-8 hours, does this sound like coeliac to you? Waiting on blood tests 

 

thank you 

[trents]

What symptoms are you experiencing?

For me, if I get a good dose of gluten I get violent emesis for 2-3 hours followed by diarrhea for several more hours. These symptoms have their onset with 2-3 hours of eating the gluten, which is about the time it takes for food to be released from the stomach into the small bowel.

[paisleydaisy]

About 24 hrs. 
With my grandmother it's 7 days, like clockwork. It must vary a lot. 

[trents]

Of course, it may depend on what particular symptoms you are referencing. Unlike me, some people do not experience emesis and diarrhea from gluten so some symptoms may be more delayed.

[CarouselLady]

On 10/15/2020 at 5:03 PM, trents said:

What symptoms are you experiencing?

For me, if I get a good dose of gluten I get violent emesis for 2-3 hours followed by diarrhea for several more hours. These symptoms have their onset with 2-3 hours of eating the gluten, which is about the time it takes for food to be released from the stomach into the small bowel.

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

[trents]

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

[CarouselLady]

6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

 

6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

 

6 hours ago, trents said:

No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge me of the toxin and I wouldn't want to interfere with that.

Ah, then I'm not alone in my reaction.  Much more severe than the typical celiac, from what I've researched, and harder to handle once it hits.  Wish there was something that helped, because it's debilitating when it occurs.

 

[trents]

The good news is that for me I think it takes a significant exposure to gluten to make me sick like that. My sense is that trace amounts don't make me acutely ill. Last year my wife made some wheat biscuits for herself and some gluten-free biscuits for me and it turned out they looked exactly the same. I accidently ate a couple three of hers one night and it made me very ill as I have described.

The bad news is I react violently like that to other things that do not have gluten. Chia seeds, hemp groats and unwashed quinoa for example. I think it must be the saponins in the seed coats. Avocados seem to make me ill as well. Some of these are things, even after Celiac diagnosis, I used to be able to eat with out issue but more recently they make me ill. I suspect I suffer from histamine intolerance.

[Scott Adams]

12 hours ago, CarouselLady said:

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

This article may be helpful, be sure to also look at the comments to the article:

 

[Posterboy]

On 11/22/2020 at 11:03 PM, CarouselLady said:

Trents, is there anything you've found that helps with the violent emesis and diahrrea? I have the same severe reaction, within an hour usually after being glutened.  Some attacks have lasted for hours, causing dehydration and weakness.  Thankfully, it rarely happens, as I am very careful, but when it does....horrible.

Carousel Lady,

Here is a thread that might help you.

https://www.celiac.com/celiac-disease/cytokines-trigger-gut-reaction-in-people-with-celiac-disease-r4892/

You might try taking Riboflavin....it has been used in Cycling Vomiting....

https://pubmed.ncbi.nlm.nih.gov/26226892/

It could also be a Thiamine deficiency. Here is a study about it.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/

I would tell you to take a B-complex but the Thiamine in most B-complexs are not highly absorbed.

Find some Benfotiamine and take with a B-complex with your meals and it might help your Emesis.

I hope this is helpful but it is not medical advise.

Posterboy,